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Weiber, Ingrid
Publications (6 of 6) Show all publications
Weiber, I., Tengland, P. A., Sanmartin Berglund, J. & Eklund, M. (2018). Everyday life when growing up with a mother with an intellectual or developmental disability: Four retrospective life-stories. Scandinavian Journal of Occupational Therapy
Open this publication in new window or tab >>Everyday life when growing up with a mother with an intellectual or developmental disability: Four retrospective life-stories
2018 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014Article in journal (Refereed) Epub ahead of print
Abstract [en]

Background: The voices of those who have grown up in a family with maternal intellectual or developmental disability (IDD) are valuable for gaining an understanding of their situation, which is essential in order to be able to support these families and avoid potentially detrimental situations. Aim: The study aim was to describe the experience of having grown up in a family where the mother has an IDD, with a focus on everyday life and perceived health consequences in adult life. Method: A qualitative method with retrospective narrative interviews and narrative content analysis was chosen. In-depth interviews were performed with four women who had experiences of a childhood with maternal IDD. Findings: Four themes emerged: Living under adverse circumstances; Dealing with one’s everyday life situation; Receiving insufficient support and wishing for more; and The echo from childhood into adult life. The findings revealed a distressing childhood, characterized by neglect, abuse, anxiety, and overburdening responsibilities, and also endeavors to keep the family situation a secret, while at the same time wanting the adult world to react. Discussion: The findings can hopefully stimulate occupational therapists and other professionals to more effectively identify the situation of these children and provide support to prevent adverse future health conditions and poor well-being. © 2019, © 2019 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

Place, publisher, year, edition, pages
Taylor and Francis Ltd, 2018
Keywords
activity, Childhood experiences, developmental disability, intellectual disability, maternal, qualitative interviews, support
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:bth-17593 (URN)10.1080/11038128.2018.1554087 (DOI)2-s2.0-85060351074 (Scopus ID)
Note

open access

Available from: 2019-02-11 Created: 2019-02-11 Last updated: 2019-02-11Bibliographically approved
Weiber, I. (2015). Children born to women with an intellectual or a developmental disability. (Doctoral dissertation). Malmö University
Open this publication in new window or tab >>Children born to women with an intellectual or a developmental disability
2015 (English)Doctoral thesis, comprehensive summary (Other academic)
Place, publisher, year, edition, pages
Malmö University, 2015
Series
Malmö University health and society, doctoral dissertations, ISSN 1653-5383
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:bth-17039 (URN)978-91-7104-585-0 (ISBN)
Public defence
2015-09-25, Aulan, Malmö, 12:38 (Swedish)
Opponent
Supervisors
Note

PhD Medicine Doktor

Available from: 2018-10-04 Created: 2018-09-25 Last updated: 2018-10-04Bibliographically approved
Weiber, I., Eklund, M. & Tengland, P.-A. -. (2015). The Characteristics of Local Support Systems, and the Roles of Professionals, in Supporting Families where a Mother has an Intellectual Disability. JARID: Journal of applied research in intellectual disabilities, 29(3), 197-210
Open this publication in new window or tab >>The Characteristics of Local Support Systems, and the Roles of Professionals, in Supporting Families where a Mother has an Intellectual Disability
2015 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 29, no 3, p. 197-210Article in journal (Refereed) Published
Abstract [en]

Background: There might be a need for support for families where the mother has an intellectual disability, in order to counteract the effects of potential parental inadequacy and other detrimental aspects of the family situation. The purpose of this study was to describe how professionals characterized such support and the collaboration required. Materials and methods: Focus group interviews involving 29 professionals were conducted and analysed using content analysis. Results: Five themes were identified: The roles and activities of the professionals involved; ways in which needs of support are identified; problems in identifying mothers with an intellectual disability; how professionals coordinate their support and work together; and the dilemma concerning legislative actions. Conclusions: By identifying both fruitful and problematic aspects of professional support, the findings may be used to enhance future support. More efficient chains of information and improved inter-sector collaboration between professions may further enhance the support practices. © 2015 John Wiley & Sons Ltd.

Place, publisher, year, edition, pages
Blackwell Publishing, 2015
Keywords
Collaboration, Disability, Family, Legislative actions, Structure of support
National Category
Nursing
Identifiers
urn:nbn:se:bth-731 (URN)10.1111/jar.12169 (DOI)000374091800001 ()2-s2.0-84924201509 (Scopus ID)
Available from: 2015-05-28 Created: 2015-05-28 Last updated: 2018-09-25Bibliographically approved
Weiber, I., Tengland, P.-A., Berglund, J. & Eklund, M. (2014). Social and Healthcare Professionals' Experiences of Giving Support to Families Where the Mother Has an Intellectual Disability: Focus on Children. Journal of Policy and Practice in Intellectual Disabilities, 11(4), 293-301
Open this publication in new window or tab >>Social and Healthcare Professionals' Experiences of Giving Support to Families Where the Mother Has an Intellectual Disability: Focus on Children
2014 (English)In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122 , Vol. 11, no 4, p. 293-301Article in journal (Refereed) Published
Abstract [en]

Families where the mother has an intellectual disability need support to counteract possible detrimental life circumstances for the children involved. The aim of this study was to describe social and healthcare professionals' experiences of providing support for families with maternal intellectual disability and specifically focused on if and how they believed the support practices benefited the children. Seven focus group interviews were performed with 29 professional informants. The transcripts were analyzed with qualitative content analysis. Three themes were identified: support practices, pedagogical strategies when supporting families with maternal intellectual disability, and maintaining the child perspective. The support practices mainly dealt with parenting skills, which were addressed by a variety of teaching methods and practices, while the children were at risk of not being seen or heard.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2014
Keywords
child's perspective, intellectual disability, mothers with intellectual disability, pedagogical strategies, support practices
National Category
Applied Mechanics Nursing
Identifiers
urn:nbn:se:bth-6333 (URN)10.1111/jppi.12091 (DOI)000348452600006 ()oai:bth.se:forskinfo2019A6E4A9CA7238C1257E51002CC8FB (Local ID)oai:bth.se:forskinfo2019A6E4A9CA7238C1257E51002CC8FB (Archive number)oai:bth.se:forskinfo2019A6E4A9CA7238C1257E51002CC8FB (OAI)
Available from: 2015-05-26 Created: 2015-05-26 Last updated: 2018-09-25Bibliographically approved
Weiber, I., Berglund, J., Tengland, P.-A. & Eklund, M. (2012). Children born to women with intellectual disabilities: 5-year incidence in a Swedish county. In: (Ed.), Journal of Intellectual Disability Research: . Paper presented at IASSID World Congress. Halifax, Canada: Wiley, 56(7-8)
Open this publication in new window or tab >>Children born to women with intellectual disabilities: 5-year incidence in a Swedish county
2012 (English)In: Journal of Intellectual Disability Research, Halifax, Canada: Wiley , 2012, Vol. 56, no 7-8Conference paper, Oral presentation only (Refereed) Published
Alternative title[sv]
Barn födda av kvinnor med intellektuella funktionsnedsättningar : 5års-incidens i ett svenskt län.
Abstract [en]

Aim: The aim of this study was to investigate the five-year incidence of children born to women with intellectual disabilities (ID) in a county in Sweden. Method: In the county of Blekinge, women born between 1975 and 1989 were identified from school registers for children and adolescents with ID. The women’s personal identification numbers were linked and matched with the Swedish Medical Birth Register. Results: In 2010, a total of 98 women with ID were identified from the school registers. The Medical Birth Register showed that nine of these women had given birth to children: one woman gave birth to two children, and eight women had had one child each. The ten children were born between 2004 and 2008. Conclusion: Approximately 2.12 per thousand children are born per year to women with intellectual disabilities according to the incidence rate calculated as a result of the present study. For the whole of Sweden that rate indicates an incidence of approximately 225 children each year. The prevalence of children (aged 0–18 years) being born to women with intellectual disabilities is, on the basis of this study, estimated at about 4,050.

Abstract [sv]

Uppskattningsvis föds 2.12 barn per 1000 födda barn av en mamma med en intellektuell funktionsnedsättning. För hela Sverige skulle detta betyda att det årligen föds ungefär 225 barn som delar denna typ av livsstart. Nyckelord: Funktionsnedsättning, familjer, föräldraskap

Place, publisher, year, edition, pages
Halifax, Canada: Wiley, 2012
Keywords
Disability, Families, Mothers with intellectual disabilities, Parenthood, Prevalence
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:bth-7078 (URN)10.1111/j.1365-2788.2012.01583.x (DOI)oai:bth.se:forskinfoB57AAF8A462877BDC1257AD2003B989F (Local ID)oai:bth.se:forskinfoB57AAF8A462877BDC1257AD2003B989F (Archive number)oai:bth.se:forskinfoB57AAF8A462877BDC1257AD2003B989F (OAI)
Conference
IASSID World Congress
Note
11/67Available from: 2012-12-13 Created: 2012-12-12 Last updated: 2015-06-30Bibliographically approved
Weiber, I., Eklund, M. & Tengland, P.-A. (2012). Professionals’ experiences of supporting families where a parent has an intellectual disability. In: Journal of Intellectual Disability Research: . Paper presented at IASSID World Congress. Wiley, 56(7-8)
Open this publication in new window or tab >>Professionals’ experiences of supporting families where a parent has an intellectual disability
2012 (English)In: Journal of Intellectual Disability Research, Wiley , 2012, Vol. 56, no 7-8Conference paper, Oral presentation only (Refereed)
Abstract [en]

Aim: The aim of this study was to describe the experiences of professionals supporting families where a parent had an intellectual disability (ID). Method: The professionals were identifi ed by purposive sampling. Seven focus groups were formed, including 29 professionals working for different welfare administrations on the county and municipality levels in the south of Sweden. The duration of the interviews varied between 45 minutes and 1 hour 45 minutes. The interviews were transcribed verbatim and were analyzed using qualitative content analysis. Results: The analyses are ongoing and the preliminary results are as follows: the professionals supported the families on the basis of strategies each administrative unit had developed; a need for more frequent cooperation between the units was highlighted; facilitating factors for successful support were parental ability and willingness to follow advice and support measures; aggravating factors were lack of cooperation and lack of adequate strategies among the various kinds of professionals involved, and parental fear that the social authorities would not let them keep the child. Conclusion: A tentative conclusion is that collaboration around these families is necessary and should include professionals from different areas in order to achieve adequate support.

Abstract [sv]

En preliminär slutsats av den pågående analysen är att det är nödvändigt med samarbete kring dessa familjer. Nyckelord: Funktionsnedsättning, familj, stödstruktur, samverkan.

Place, publisher, year, edition, pages
Wiley, 2012
Keywords
Disability, Family, Structure of support, Collaboration, Cooperation
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:bth-7080 (URN)10.1111/j.1365-2788.2012.01583.x (DOI)
External cooperation:
Conference
IASSID World Congress
Available from: 2012-12-12 Created: 2012-12-12 Last updated: 2016-09-01Bibliographically approved
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