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Support given by health professionals before and after a patient's death to relatives involved in general palliative care at home in Sweden: Findings from the Swedish Register of Palliative Care
Blekinge Institute of Technology, Faculty of Engineering, Department of Health.ORCID iD: 0000-0002-2782-147X
Blekinge Institute of Technology, Faculty of Engineering, Department of Health.ORCID iD: 0000-0003-3166-0274
Malmö university.ORCID iD: 0000-0002-6625-7031
Blekinge Institute of Technology, Faculty of Engineering, Department of Health.ORCID iD: 0000-0002-5731-2799
2023 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523Article in journal (Refereed) Epub ahead of print
Abstract [en]

Objectives. General palliative care (PC) is provided more at home, leading to increased involvement of relatives. Although support for relatives is a fundamental component of PC, there are deficiencies in the support provided to relatives when general PC is provided at home. This study aimed to describe the support provided by health professionals before and after a patient's death to relatives involved in general PC at home.

Methods. A cross-sectional register study was implemented, with data from the Swedish Register of Palliative care. The sample consisted of 160 completed surveys from relatives who had been involved in general PC at home, with 160 related surveys answered by health professionals. Only the questions about support to relatives were used from the surveys.

Results. The findings showed that although many relatives appear to receive support in general PC at home, not all relatives receive optimal support before or after a patient's death. The findings also indicated differences in whether relatives received some support before and after a patient's death depending on the type of relative. There were also differences in responses between health professionals and relatives regarding if relatives received counseling from a doctor about whether the patient was dying.

Significance of results. There is potential for improvements regarding support for relatives, especially after a patient's death, which has been confirmed in previous studies. The differences in whether relatives received support before and after a patient's death depending on the type of relative highlight the need for future research on how to support different types of relatives before and after a patient's death when general PC is provided at home.

Place, publisher, year, edition, pages
Cambridge University Press, 2023.
Keywords [en]
Home care, palliative care, relatives support, Of-Life Care, Family Caregivers, End, Cancer, People, Needs
National Category
Nursing
Identifiers
URN: urn:nbn:se:bth-25485DOI: 10.1017/S1478951523001323ISI: 001071522700001PubMedID: 37746762Scopus ID: 2-s2.0-85173773758OAI: oai:DiVA.org:bth-25485DiVA, id: diva2:1806097
Available from: 2023-10-19 Created: 2023-10-19 Last updated: 2023-11-06Bibliographically approved

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Mikaelsson Midlöv, ElinaLindberg, TereseSkär, Lisa

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