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The significance of Associations for women with FM
Luleå tekniska universitet, Omvårdnad.
Luleå tekniska universitet, Omvårdnad.
Luleå tekniska universitet, Omvårdnad.
Luleå tekniska universitet, Omvårdnad.
2014 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 36, no 21, 1755-1761 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: Living with fibromyalgia (FM) means living with a long-term pain syndrome that is invisible to others. Support and understanding from others seem to be important to managing the affected daily life. The aim of this study was to describe the significance of FM associations for women with FM. Methods: Data collection was carried out through focus group discussions with seventeen women with FM. Data were analyzed through thematic content analysis. Results: The findings show that women experienced associations for people with FM as important as they gave access to contacts with others with similar experiences. Their need of togetherness was fulfilled at the association and they described being strengthened by the support received. Because of the lack of information and knowledge about FM, the association was described as an important venue for getting and mediating information about the illness. Conclusions: At the association the women seem to be empowered, which increases their ability to manage their daily lives despite the limitations imposed by FM. Healthcare personnel could not satisfy the women’s needs and to manage to support women with FM. There is a need for communication based on a shared understanding between the women and healthcare personnel.Implications for Rehabilitation Read More: http://informahealthcare.com/eprint/hxrQu88eIVBPKf48aBpd/full

Place, publisher, year, edition, pages
2014. Vol. 36, no 21, 1755-1761 p.
National Category
Nursing
Research subject
Nursing
Identifiers
URN: urn:nbn:se:bth-14292DOI: 10.3109/09638288.2013.868046Local ID: a78fde10-3010-4747-978e-414aeb6b40d5OAI: oai:DiVA.org:bth-14292DiVA: diva2:1098250
Note

Validerad; 2014; 20131120 (andbra)

Available from: 2016-09-29 Created: 2017-05-23Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
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  • asciidoc
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