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Children born to women with an intellectual or a developmental disability
Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
2015 (English)Doctoral thesis, comprehensive summary (Other academic)
Place, publisher, year, edition, pages
Malmö University , 2015.
Series
Malmö University health and society, doctoral dissertations, ISSN 1653-5383
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:bth-17039ISBN: 978-91-7104-585-0 (print)OAI: oai:DiVA.org:bth-17039DiVA, id: diva2:1250879
Public defence
2015-09-25, Aulan, Malmö, 12:38 (Swedish)
Opponent
Supervisors
Note

PhD Medicine Doktor

Available from: 2018-10-04 Created: 2018-09-25 Last updated: 2018-10-04Bibliographically approved
List of papers
1. Social and Healthcare Professionals' Experiences of Giving Support to Families Where the Mother Has an Intellectual Disability: Focus on Children
Open this publication in new window or tab >>Social and Healthcare Professionals' Experiences of Giving Support to Families Where the Mother Has an Intellectual Disability: Focus on Children
2014 (English)In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122 , Vol. 11, no 4, p. 293-301Article in journal (Refereed) Published
Abstract [en]

Families where the mother has an intellectual disability need support to counteract possible detrimental life circumstances for the children involved. The aim of this study was to describe social and healthcare professionals' experiences of providing support for families with maternal intellectual disability and specifically focused on if and how they believed the support practices benefited the children. Seven focus group interviews were performed with 29 professional informants. The transcripts were analyzed with qualitative content analysis. Three themes were identified: support practices, pedagogical strategies when supporting families with maternal intellectual disability, and maintaining the child perspective. The support practices mainly dealt with parenting skills, which were addressed by a variety of teaching methods and practices, while the children were at risk of not being seen or heard.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2014
Keywords
child's perspective, intellectual disability, mothers with intellectual disability, pedagogical strategies, support practices
National Category
Applied Mechanics Nursing
Identifiers
urn:nbn:se:bth-6333 (URN)10.1111/jppi.12091 (DOI)000348452600006 ()oai:bth.se:forskinfo2019A6E4A9CA7238C1257E51002CC8FB (Local ID)oai:bth.se:forskinfo2019A6E4A9CA7238C1257E51002CC8FB (Archive number)oai:bth.se:forskinfo2019A6E4A9CA7238C1257E51002CC8FB (OAI)
Available from: 2015-05-26 Created: 2015-05-26 Last updated: 2018-09-25Bibliographically approved
2. The Characteristics of Local Support Systems, and the Roles of Professionals, in Supporting Families where a Mother has an Intellectual Disability
Open this publication in new window or tab >>The Characteristics of Local Support Systems, and the Roles of Professionals, in Supporting Families where a Mother has an Intellectual Disability
2015 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 29, no 3, p. 197-210Article in journal (Refereed) Published
Abstract [en]

Background: There might be a need for support for families where the mother has an intellectual disability, in order to counteract the effects of potential parental inadequacy and other detrimental aspects of the family situation. The purpose of this study was to describe how professionals characterized such support and the collaboration required. Materials and methods: Focus group interviews involving 29 professionals were conducted and analysed using content analysis. Results: Five themes were identified: The roles and activities of the professionals involved; ways in which needs of support are identified; problems in identifying mothers with an intellectual disability; how professionals coordinate their support and work together; and the dilemma concerning legislative actions. Conclusions: By identifying both fruitful and problematic aspects of professional support, the findings may be used to enhance future support. More efficient chains of information and improved inter-sector collaboration between professions may further enhance the support practices. © 2015 John Wiley & Sons Ltd.

Place, publisher, year, edition, pages
Blackwell Publishing, 2015
Keywords
Collaboration, Disability, Family, Legislative actions, Structure of support
National Category
Nursing
Identifiers
urn:nbn:se:bth-731 (URN)10.1111/jar.12169 (DOI)000374091800001 ()2-s2.0-84924201509 (Scopus ID)
Available from: 2015-05-28 Created: 2015-05-28 Last updated: 2018-09-25Bibliographically approved
3. Children born to women with intellectual disabilities: 5-year incidence in a Swedish county
Open this publication in new window or tab >>Children born to women with intellectual disabilities: 5-year incidence in a Swedish county
2011 (English)In: Journal of Intellectual Disability Research, ISSN 0964-2633, Vol. 55, no 11, p. 1078-1085Article in journal (Refereed) Published
Alternative title[sv]
Barn födda av kvinnor med intellektuella funktionshinder : femårs-incidens i ett svenskt län
Abstract [en]

Background: Families with parental intellectual disabilities are likely to need support in achieving a decent family life. In order to accurately plan for such support services, society needs data regarding the occurrence of those parents and their children. The aim of this study was to investigate the five-year incidence of children born to women with intellectual disabilities in a county in Sweden. Methods: Women born between 1975 and 1989 were identified from school registers for children and adolescents with intellectual disabilities in the county of Blekinge. The women’s personal identification numbers were, in 2010, linked and matched with the Swedish Medical Birth Register. Results: In total, 98 women with intellectual disabilities were identified. Nine of these had given birth to children; one woman to two children and eight women to one child each. The ten children were born between 2004 and 2008. Conclusion: The incidence rate calculated as a result of the present study indicates that approximately 2.12 per thousand children are born per year to women with intellectual disabilities. For the whole of Sweden that rate indicates an incidence of approximately 225 children each year. On the basis of this, the prevalence of children (aged 0-18 years) being born to women with intellectual disabilities is estimated at about 4,050.

Abstract [sv]

Incidensen som kalkylerades i denna studie indikerar att ca 2,12 barn per tusen födda barn föds av kvinnor med intellektuella funktionshinder. För Sverige som helhet indikerar detta en incidens av ca 225 barn som årligen föds av kvinnor med intellektuella funktionshinder. På basis av detta kan en prevalens av barn (0-18 år) födda av kvinnor med intellektuella funktionshinder uppskattas till ca 4 050. Sökord: Funktionshinder, familjer, mödrar med intellektuella funktionshinder, föräldraskap, prevalens.

Place, publisher, year, edition, pages
Blackwell, 2011
Keywords
Disability, families, mothers with intellectual disabilities, parenthood, prevalence
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:bth-7218 (URN)10.1111/j.1365-2788.2011.01441.x (DOI)000297022900007 ()oai:bth.se:forskinfoB315067907F04B0AC12578F60031B179 (Local ID)oai:bth.se:forskinfoB315067907F04B0AC12578F60031B179 (Archive number)oai:bth.se:forskinfoB315067907F04B0AC12578F60031B179 (OAI)
Available from: 2012-11-12 Created: 2011-08-24 Last updated: 2018-09-25Bibliographically approved

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