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  • 1.
    Andersson, Ewa
    et al.
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Borglin, Gunilla
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Sjöström-Strand, Annica
    Willman, Ania
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Standing alone when life takes an unexpected turn: Being a midlife next of kin of a relative who has suffered a myocardial infarction2013Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 27, nr 4, s. 864-871Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Suffering a myocardial infarction (MI) is a life-threatening event that impacts not only on the individual concerned but also on the next of kin. However, there seems to be a paucity of naturalistic inquiries that focus specifically on midlife next of kin and their experience of being close to a relative who has suffered an MI. This study aims to elucidate the experience of being a midlife next of kin of a relative who has suffered a myocardial infarction. Method: Nine women and four men in midlife participated in the focused interviews, which were conducted and analysed during 2010/2011 using Lindseths and Norbergs' description of the phenomenological hermeneutical method. Findings: Four themes - Solely responsible, Lurking unease, Left out of the picture and Life on hold - formed the basis of the core theme Standing alone when life takes an unexpected turn. The core theme was interpreted as a central phenomenon encompassing the experience of being solely responsible for the well-being of their relative and the family, thus putting their own life on hold. The core theme also reflected the next of kin's experience of being left out of the picture when it came to the relative's care before and after the MI. Conclusion: The next of kin's negative feelings of standing alone were further intensified by their experience of being left out of the picture by the healthcare professionals concerning their relative's care. As a cardiac nurse, it would seem essential to have knowledge about the experiences of next of kin in connection with a relative's MI event. Such knowledge can facilitate the planning and organisation of nursing care and at the same time address the next of kin's role in the recovery and rehabilitation process.

  • 2.
    Andersson, Lena
    et al.
    Department of Geriatrics, Piteå Älvdal Hospital.
    Burman, Marie
    Department of Orthopaedics, Piteå älvdal Hospital.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Experiences of caretime during hospitalization in a medical ward: older patients' perspective2011Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, nr 4, s. 646-652Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    he population is ageing the world over, and there is an increasing prevalence of chronic illness and complex conditions. Older people are at greater risk of having several complications than the general population, leading to more time spent in hospital and an increased risk of readmission. The most specific need of older patients is often the multiple need of care. The aim of this study was to describe older patients’ experiences of caretime during a hospitalization in a medical ward. Data were collected with semi-structured interviews with nine older patients, and analysed using qualitative thematic content analysis. The analysis resulted in two themes and five categories. The results show that caretime during hospitalization includes a lot of waiting and that patients manage the waiting in different ways. The results also point out the importance of patients developing good relationships with professionals since good relations creates feelings of security and can reduce anxiety and fear during a hospital stay. The patients pointed out the importance of being more involved in their own care and asked for more detailed information about the hospital stay. The results revealed that information makes patients’ more secure and safe during a hospitalization and makes them participate and affect their own care and treatment more.

  • 3. Bahtsevani, Christel
    et al.
    Willman, Ania
    Stoltz, Peter
    Östman, Margareta
    Experiences of the implementation of clinical practice guidelines: interviews with nurse managers and nurses in hospital care2010Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 24, nr 3, s. 514-522Artikel i tidskrift (Refereegranskat)
    Abstract [sv]

    Även om implementering av kliniska riktlinjer har blivit en viktig del i vården så är detta lite studerat med kvalitativ metod i den kliniska verkligheten. Syftet var att belysa erfarenheter och faktorer av betydelse för implementering av kliniska riktlinjer inom sjukhusvården. Tjugo intervjuer genomfördes, skrevs ut ordagrannt och analyserades med manisfest och latent innehållsanalys. Fem huvudkategorier och ett tema utvecklades i analysen. Data visar att implementering av kliniska riktlinjer är en kontinuerlig process av att skapa tillförlitliga rutiner som involverar all personal och att detta förväntas leda till bättre och säkrare vård för patienter såväl som att öka kunskap och självförtroende hos personalen. Implementeringsprocessen initieras av interna och externa krav och är ett sätt att hålla jämna steg med kunskapsutvecklingen. Flera faktorer underlättar implementeringen och har inflytande över användning och följsamhet till riktlinjerna. För att öka följsamheten verkar det vara viktigt att involvera all personal i implementeringen och att kontinuerligt följa upp och ge feed-back. Det verkar även nödvändigt att utvärdera processen för att övervaka följsamhet och balansera detta mot prioriteringar och kostnader.

  • 4. Blomqvist, Kerstin
    et al.
    Hallberg, Ingalill R
    Managing pain in older persons who receive home-help for their daily living. Perceptions by older persons and care providers2002Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, s. 319-328Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Pain is a common problem for older persons who need professional help for their daily living. In this study 94 older persons (75+) in persistent pain were compared with 52 care providers concerning the pain management methods they had used/administered during the previous week and how helpful they perceived these methods to be. interviews were based on 16 items from the original version of the pain management inventory (PMI). Both groups perceived prescribed medication, rest and distraction as the most frequently utilized methods. Specific methods such as transcutaneous electrical nerve stimulation (TENS) or bracing/splinting or bandaging the affected body part were seldom employed, although most users perceived these methods as helpful. Care providers perceived most methods for managing pain as more effective than older persons did. The results imply that care providers need skills in a variety of pharmacological and nonpharmacological methods to manage pain and a need to evaluate effectiveness of the methods in a systematic way.

  • 5.
    Bohman, Doris
    et al.
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Ericsson, Terese
    Borglin, Gunilla
    Swedish nurses' perception of nursing research and its implementation in clinical practice: A focus group study2013Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 27, nr 3, s. 525-533Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Nowadays, nursing research is seen as an integral part of professional nursing although implementing knowledge derived from nursing research into the practice setting is still problematic. Current research, conducted mainly with a descriptive quantitative design, highlights the struggle experienced by Registered Nurses (RNs) to use and implement research findings in clinical practice. Therefore, the aim of this naturalistic inquiry was to explore nurses' perception of nursing research and its implementation in a clinical context. Method and sample: A qualitative approach was chosen, and four focus group discussions were conducted. The groups comprised a total of 16 RNs (three men and 13 women) working in a secondary care setting. The transcribed texts were analysed, inspired by Burnard's description of content analysis. Findings: The texts were interpreted as representing three predominant themes: scholastic, individual and contextual influences highlighted as influential components impacting on the RNs' views on research and its implementation as well as on their readiness to accept and support it. However, the most influential aspect permeating our themes was their educational background - the type of qualification they held. In general, the RNs with a Bachelor of Science in Nursing viewed research and the implementation of knowledge in practice more favourably than those RNs with a diploma. Conclusion: Our findings, although based on a small qualitative study, are congruent with others, indicating that further research is warranted concerning the impact of education on RNs' views of nursing research and its implementation. Hence, it might well be that the RNs' educational point of departure needs to be stressed more than what so far have been anticipated. In the meanwhile, it is possible that a number of strategies could be tested to promote a more favourable view in these issues and where the nursing education has the possibility to influence this endeavour.

  • 6. Bohman, Doris
    et al.
    Wyk, Neltjie C. van
    Ekman, Sirkka-Liisa
    Tradition in transition-intergenerational relations with focus on the aged and their family members in a South African context2009Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 23, nr 3, s. 446-455Artikel i tidskrift (Refereegranskat)
    Abstract [sv]

    Denna studie beskriver generationsövergripande relationers inflytande på omvårdnaden av äldre i en övergånsperiod/ transition uttryckt av en grupp äldre sydafrikaner och deras familjemedlemmar. Fokuserad etnografi genomfördes från 2001 till 2006 i ett semi-landsbygdsområde i centrala Sydafrika. Tjugonio personer som representerade 16 familjer deltog i multipla gruppintervjuer därutöver genomfördes individuella intervjuer med 10 av deltagarna. Förutom intervjuer ingick hembesök, deltagande i sociala aktiviteter, fältanteckningar och videoinspelningar i studien. Materialet analyserades med användande av kvalitativ innehållsanalys. Studien visar på aspekter i anknytning till tradition i transition såsom ömsesidig omvårdnad mellan generationer, betydelsen av traditionella värden och moderniseringens inflytande på omvårdnad. Denna etnografiska studie bidrar till kunskap inom gerontologisk omvårdnad genom att belysa transitionens påverkan på de äldres roll samt omvårdnaden av äldre i storfamiljen vilket är av vikt för hälso-och sjukvårdspersonal involverade i omvårdnad av en växande grupp äldre i Södra Afrika och i länder med en stor representation av minoritetsgrupper från utvecklingsländer. Nyckelord: Familjen, modernisering, Sydafrika, tradition, transition, äldre, ömsesidighet

  • 7. Borg, Christel
    Life satisfaction among informal caregivers in comparison with non-caregivers2006Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 20, s. 427-38Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Being a caregiver with responsibility for someone with reduced health compared with not being a caregiver maymean different views of life satisfaction. Knowledge of what leads to reduced life satisfaction in caregivers may be helpful in interventions. Informal caregivers gainfully employed or not, aged 50–89 years, were studied with regard to life satisfaction depending on the extent of caregiving to identify types of social support of value for caregivers. A cross-sectional study was conducted including a sample of 151 informal caregivers with a high caregiving extent, 392 caregivers with a lower caregiving extent and 1258 non-caregivers. The sample was randomly selected to correspond with older Swedes as a whole aged 50–89 years. A questionnaire containing a modified form of Older Americans’ Resources Schedule (OARS) and Life Satisfaction Index Z (LSIZ) was used; 19.6% helped someone with activities of daily living and of these 27% stated that they did so frequently. Frequent caregivingimplied significantly higher age, being more often married and retired, than less frequent caregivers and non-caregivers. Frequent caregivers also performed personal activities of daily living (PADL) to a higher extent than less frequent caregivers and had significantly lower LSIZ (mean 14.8) than less frequent caregivers (mean 17.6) and noncaregivers (mean 17.7). No significant differences were found between less frequent caregivers and non-caregivers in LSIZ. One-fourth had support from others, the commonesttype being able to converse with a next of kin, and help and advice from professionals. Lower life satisfaction was associated with not being employed, low social resources, not refreshed after a night’s sleep, overall poor health and frequent caregiving in the entire sample. High caregiving extent was associated with lower life satisfaction. The most important factors explaining lower life satisfaction among frequent caregivers were having low social resources and having poor health. Economic compensation or payment was the support most desired.

  • 8. Ebbeskog, B
    et al.
    Ekman, Sirkka-Liisa
    Elderly persons' experiences of living with venous leg ulcer: living in a dialectal relationship between freedom and imprisonment2001Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 15, nr 3, s. 235-243Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim was to illuminate elderly persons' experiences of living with venous leg ulcer. Fifteen persons 74-89 years of age with active leg ulcer were interviewed. Data were analysed utilizing a phenomenological-hermeneutic approach inspired by Ricoeur. The analysis includes dialectic movement between understanding and explanation of the text as a whole and its parts, In the structural analysis four themes were identified: emotional consequences of altered body image, living a restricted life, achievement of well-being in connection with a painful wound and bandage, and struggle between hope and despair with regard to a lengthy healing process. The comprehensive understanding indicated that the meaning of living with venous leg ulcer can be understood as a dialectal relationship between, on the one hand the feeling of being imprisoned in the body, the bandage and the home, and on the other hand, hope of freedom from a burdensome body. The results indicate that the concept, body of image, is vitally relevant to the caring, of elderly people with venous leg ulcer. The study shows the importance of recognizing the persons' perceptions of their leg ulcers and the impact of these perceptions on well-being. Nurses can thereby anticipate problems and provide more sensitive care.

  • 9.
    Fagerström, Cecilia
    et al.
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Persson, Helen
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Holst, Göran
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Hallberg, Ingalill R
    Determinants of Feeling Hindered by Health Problems in Daily Living at 60 Years and Above2008Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, nr 3, s. 410-421Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Although the ability to perform activities of daily living (ADL) is frequently used to identify the impact on daily living caused by health problems such as diseases, impaired eyesight or hearing, it is still not well known what makes people feel hindered in daily living with more or less inability to perform ADL. The aim of this study was to investigate feeling hindered by health problems in daily living among people (n = 958, 60-96 years) in relation to ADL capacity, health problems as well as social and financial resources, sense of coherence and life satisfaction. The data are taken from a baseline survey in one of the four included centres (Blekinge) of the longitudinal multicentre cohort study, The Swedish National Study on Aging and Care. The result showed that people felt hindered by their health problems despite no impairment in ADL capacity. Feeling greatly hindered by health problems was associated with factors linked to mobility but also to fatigue, no help when needed, and avoiding being outdoors due to fear of falling. Factors associated with feeling greatly hindered differed depending on whether people were impaired in ADL capacity or not. In people with excellent ADL capacity feeling hindered was associated with picking up things from the floor and rising from a chair and fatigue, whereas avoiding being outdoors, no help when needed and rising from a chair were found to be associated with feeling hindered by health problems among people with impaired ADL capacity. Combining people's ADL capacity with questions about feeling hindered may provide knowledge of determinant factors of feeling hindered in relation to ADL capacity, impaired or not, to identify people in need of rehabilitation or other interventions.

  • 10.
    Fagerström, Cecilia
    et al.
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Tuvesson, Hanna
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Axelsson, Lisa
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Nilsson, Lina
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    The role of ICT in nursing practice: An integrative literature review of the Swedish context2017Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, s. 434-448Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: The Swedish healthcare system employs information and communication technologies (ICT) in nursing practice to meet quality-, security- and efficiency-related demands. Although ICT is integrated with nursing practices, nurses do not always feel that they are convenient to use it. We need to improve our knowledge of the role of ICT in healthcare environments and so we decided to complement existing experience of how ICT influences nursing practice. Aim: This study aimed to review and synthesise the available literature on the role of ICT in nursing practice in Swedish healthcare settings. Method: To consolidate previous studies based on diverse methodologies, an integrative literature review was carried out. Three databases were used to search for literature, 20 articles met the inclusion criteria. Results: The literature review indicates that ICT integration into nursing practice is a complex process that impacts nurses’ communication and relationships in patient care, working conditions, and professional identities and development. Nurses are found to express ambiguous views on ICT as a usable service in their everyday practice since it impacts both positively and negatively. Discussion and conclusion: Although ICT cannot replace physical presence, it can be considered a complementary service that gives rise to improved patient care. However, nonverbal communication cues may be missed when ICT is used as mediating tool and ICT can be limiting because it is not always designed to meet nurse and patient needs. The meaning of an encounter appears to change when ICT is used in nursing practice, not only for patient relationships but also for interpersonal communication.

  • 11. Gebru, Kerstin
    et al.
    Khalaf, Azzam
    Willman, Ania
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Outcome analysis of a research-based didactic model for education to promote culturally competent nursing care in Sweden: a questionnaire study2008Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, nr 3, s. 348-356Artikel i tidskrift (Refereegranskat)
    Abstract [sv]

    Utvärdering med hjälp av enkäter till studenter i det 3-åriga sjuksköterskeprogrammet visar att implementering av en forskningsbaserad didaktisk modell för att undervisa om kulturkongruent omvårdnad har effekt. Studenternas självvärdering visar att de anser att de har högre kompetens att möta kraven från en multikulturell hälso- och sjukvård. Förmågan att känna igen och förstå konsekvenserna av internationell migration skattar de också högt.

  • 12. Hellström, Ylva
    Determinants and characteristics of help provision for elderly people living at home and in relation to quality of life2004Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 18, nr 4, s. 387-395Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to investigate determinants of help from informal or formal caregivers or a combination of both among people aged 75 or more and living at home, and the characteristics of the recipients, the help they received and their quality of life (QoL). The sample for this study was 448 elderly people, 75-99 years of age, living at home and receiving help with activities for daily living, instrumental or both instrumental and personal. Regression analysis showed high QoL not to be significantly related to who was providing the help, whilst it was related to higher age, living with someone, lower number of complaints and managing to be alone at home. Multinomial regression analysis showed age, number of children, number of complaints, the ability to stay alone at home and living alone to predict receiving help from different kinds of caregivers. Recipients receiving help from informal caregivers were younger, more often married and living together with someone, whilst those receiving help from both informal and formal caregivers had more help with instrumental and personal activities for daily living and were not able to stay alone at home as much as those receiving help from other kinds of caregivers. Those receiving help from formal caregivers had fewer children, were single and were living alone more often than the other recipients. Thus the responsibility for help for elderly people rests heavily on informal caregivers, whom it seems essential to support. As public service at home is preferably given to those living alone or able to stay alone at home, those without relatives may not be able to remain at home when their need of help increases.

  • 13. Holst, Göran
    et al.
    Edberg, Anna-Karin
    Wellbeing among people with dementia and their next of kin over a period of 3 years2011Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, nr 3, s. 549-557Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Little is known about the dyadic experience over time of people with dementia and their next of kin. The aim of this study was to investigate the state of mind of people with dementia, their next of kin’s experience of burden and satisfaction, and factors associated with these experiences over a 3-year period. The sample consisted of 32 people with dementia living at home with family caregivers in the south of Sweden. Data were collected during the period 2004–2007 and consisted of patients self reports (GDS), dementia nurse assessment (MMSE, Berger and ADL) and next-of-kin assessment (patient’s state of mind and care provision). Data also consisted of nextof- kin’s self reports concerning health, burden and satisfaction. The result showed that patients’ state of mind was mainly positive at baseline but a deterioration was seen over time in the patient’s mood and cognitive functioning together with an increase in ADLdependency and suspected depression. Dependency in personal ADL entailed a higher risk of being in a negative state of mind. For next of kin the experience of burden increased while satisfaction decreased over the 3 years. The inter-relationship between the patients’ mood and the caregiver’s satisfaction and burden seems to get stronger over time. At baseline caregiver burden was mainly related to the next of kins’ general health and to patient behaviours that were difficult to handle. During the progression of the disease caregiver satisfaction becomes increasingly related to patient state of mind and dependency. There is, however, a need for more research focusing on the specific inter-relational aspects as previous studies have mainly focused on either the situation for the person with dementia or on the caregiver.

  • 14.
    Lindberg, Terese
    et al.
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Fagerström, Cecilia
    Blekinge Cty Council, Blekinge Ctr Competence, Karlskrona, Sweden.;Linnaeus Univ, Fac Hlth & Life Sci, Dept Hlth & Caring Sci, Kalmar, Sweden..
    Nonpharmacological methods: frequency of use and follow-up actions among healthcare staff in the care of older people2019Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Older people are at risk of developing multi-comorbidity and thus being exposed to multiple treatments and drugs to manage the emerging health complaints. More focus has been put on nonpharmacological alternatives. However, studies revealing the healthcare staff perspective on using nonpharmacological methods (NPMs) in the care of older people are still lacking. Thus, the aim of this study was to map the use of NPMs in daily practices and the follow-up thereof. A population-based survey with questionnaires was performed, included all healthcare professionals (n = 163; nurses and paramedical professionals) working in one district of elderly care in Sweden. The older person's anxiety and worry (76.1%), sleeping problems (53.1%) and pain (41.1%) were the health problems in daily life most likely to trigger use of NPMs. To manage the emerging health problems, interactions (87.1%), diet and nutrition supplements (63.2%) and physical activity were commonly used, particularly by nurses. One third (n = 54) stated that they did not evaluate the NPMs used, with no statistical differences between nurses and paramedical professionals. The present study indicated that NPMs were used in care of older people among nurses and paramedical professionals, but not in a systematic way and often without follow-up.

  • 15.
    Lindberg, Terese
    et al.
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Sanmartin Berglund, Johan
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Elmståhl, Sölve
    Lunds Universitet, SWE.
    Bohman, Doris
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Older individuals’ need for knowledge and follow-up about their chronic atrial fibrillation, lifelong medical treatment and medical controls2017Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 31, nr 4, s. 1022-1030Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Older individuals with chronic atrial fibrillation (AF) often experience physical symptoms and feel psychologically unwell. In addition, these persons are prescribed lifelong medical treatment that requires regular monitoring. Through 11 individual interviews, this interpretive description study aimed to explore and describe lifelong medical treatment and the need for medical controls as experienced from the perspective of older individuals living with chronic AF. The interviews were performed during 2014–2015; furthermore, they were recorded, transcribed verbatim and analysed for thematic patterns using thematic analysis inspired by Braun and Clarke. Ethical standards were followed throughout the study. The findings revealed one main theme: ‘ambivalence in the need of knowledge’ showing that lifelong medical treatment and the need for medical controls, in general, meant experiencing feelings of ‘it doesn't matter, but it does matter’ and ‘being in the hands of the healthcare system’. The older persons lacked knowledge about their condition, which generated poor insight into their medical treatment and this in turn affected their daily life. They had thoughts and questions about their medication, but did not have an opportunity to ask the questions because of lack of follow-up from the healthcare system. The findings underscore the negative impact chronic AF has on older people's life and emphasises the need for follow-up and providing information from health care to these individuals. © 2017 Nordic College of Caring Science

  • 16. Lindholm, Lisbet
    et al.
    Rehnsfeldt, Arne
    Arman, Maria
    Hamrin, Elisabeth
    Significant others' experience of suffering when living with women with breast cancer2002Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, s. 248-255Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This is an inquiry into how significant others experience being close to a woman suffering from breast cancer. In order to find this out, theme interviews were arranged with 17 women and 16 significant others from four different caring cultures in Sweden and Finland. A phenomenological case study methodology was adopted and in the analysis of the data a scientific teamwork model was employed, based on ideas developed at the Vancouver School of Doing Phenomenology. The findings show that the significant others experience deep often unrelieved suffering. They consider themselves prisoners of a situation of uncertainty and powerlessness when standing by the woman. They are torn between their own suffering and their desire to alleviate the woman's suffering. A vicious circle of mutual protection intensifies the suffering of the significant other, while actively sharing the suffering brings relief. The gravity of the situation creates an ethical urge in the significant other to assume responsibility for life in common with the woman.

  • 17. Nilsson, Carina
    et al.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Swedish district nurses' experiences on the use of information and communication technology for supporting people with serious chronic illness living at home: a case study2010Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 24, nr 2, s. 259-265Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this case study was to describe two District Nurses' (DN) experiences of using information and communication technology (ICT) to communicate with chronically ill people in their homes. An electronic messaging program via computers and mobile phones with an Internet connection was used, enabling DNs and the ill people to exchange messages to and from anywhere. The program comprised different virtual rooms, and communication was via text messages. The DNs in this study used the program two to four times each week from November 2003 to March 2004. Semi-structured interviews were performed before, during and after the implementation of the new technology and were analysed using thematic content analysis. The results showed that the DNs felt that the technology increased accessibility to nursing care through a more direct communication with the ill person meaning that a more trusting relationship could be created. The DNs also experienced that the use of ICT saved working time. This study indicates that the use of ICT for communication allowed the DN to better support a chronically ill person at home leading to improved home nursing care. This method of communication cannot replace physical presence, but can be seen as a complement to nursing care at home.

  • 18. Olsson, Pernilla Turonen
    et al.
    Petersson, Helena
    Willman, Ania
    Gardulf, Ann
    Standardized care plans in Swedish health care: their quality and the extent to which they are used.2009Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 23, nr 4, s. 820-825Artikel i tidskrift (Refereegranskat)
    Abstract [sv]

    Syftet var att undersöka kvaliten på standardvårdplaner (SVP) och undersöka i vilken utsträckning de används inom svensk sjukhusvård. Syftet var också att granska kvaliteten på de kunskapsunderlag som existerande SVP vilar på. Totalt deltog 25 sjukhus, spridda över hela Sverige. De tillfrågades om att skicka in alla dokumnt som benämns SVP med tillhörande kunskapsunderlag. Endast 4% av dokumenten uppfyllde förutbestämda krav på att vara en SVP. Inte något av kunskapsunderlagen till dessa var evidensbaserat. Det finns alltså en bristande kunskap om vad som är en SVP och om vilket kunskapsunderlag som behövs. man kan fråga sig hur forskningsresultat används vid utarbetande av SVP. Det är viktigt att lyfta fram att den vårdpersonal som utarbetar SVP ska ha vetenskaplig metodskolning och viss erfarenhet. Det behövs ett samarbete på nationell nivå för att utarbeta SVP grupper av patienter med samma medicinska diagnos och likartade behandlingar.

  • 19.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Disabled children's perceptions of technical aids, assistance and peers in play situations2002Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 16, nr 1, s. 27-33Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of the study was to gain a deeper understanding of how children with disabilities perceive their technical aids in play situations. Transcribed interviews with eight children with disabilities were analysed according to the constant comparative method of grounded theory described by Glaser & Strauss. Three categories were found in the data, forming a model describing the child's relations in play situations (core category): to technical aids, to assistance and to the play environment. Two of the categories included relations to adults. The children's opportunities to play required that a parent or an assistant be present. Access to the playground also required the assistance of adults. The third category, relation to technical aids, is an individual one, as the technical aids were perceived differently by all the children. The technical aids were also seen as an extension of the child. The implications for parents and service providers are discussed

  • 20.
    Skär, Lisa
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Prellwitz, Maria
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Participation in play activities: a single-case study focusing on a child with obesity experiences2008Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, nr 2, s. 211-219Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this study was to describe how a child with obesity perceived participation in play activities. A single-case study design was chosen to optimize the understanding of the complexities of the research question. A 9-year-old boy diagnosed with obesity was studied. This is a typical case and is studied mainly to provide understanding to the issue. The data were collected from interviews with the boy, his mother and his teacher. Data were also collected through observations and a self-report assessment instrument called Kid Play Profile. The results showed that the boy was ridiculed by his peers and that at times he felt excluded from them, which prevented him from participating in play activities. The boy's experience came from different perceived problems such as lack of friends to play with, his inability to know how to perform in different play activities, and lack of proper support and encouragement from adults. Supporting children to overcome social skills deficits could prevent them from being teased and may have a positive effect on health. To optimize children's participation in play activities, it is important for adults to give them proper support and encouragement. The results were discussed with regard to earlier research, and topics for further research are suggested.

  • 21.
    Skär, Lisa
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Complaints with encounters in healthcare: Men’s experiences2012Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 26, nr 2, s. 279-286Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Complaints with encounters in healthcare - men's experiences Good encounters within healthcare are important for the manner in which ill people facilitate their health and their perception of quality of care. Research about quality of care are important, but point out that dissatisfaction with healthcare may in the future be even more common regarding the demands for a more effective healthcare. The aim of this study was therefore to describe experiences of dissatisfaction with encounters in healthcare among men who personally filed a complaint to the Patients' Advisory Committee in the county council. Qualitative data were collected in semi-structured interviews with a purposive sample of nine men who have filed a complaint to the Patients' Advisory Committee. The analysis resulted in two categories: being met with a disrespectful manner and not receiving a personal apology. The results in the first category describe that the men were treated with disrespect and suspicions by healthcare professionals. This was related to lack of communication which made the men sensitive to negative attitudes on the part of professionals. The results in the second category show that the men expected amends to be made in form of a personal apology about the dissatisfaction. The men were given no opportunities to influence the encounters and the professionals were unconscious of their behaviour in form of bad treatment. In conclusion, the results indicate the importance of meeting patients and their relatives with respect and dignity, listening to their experiences and proceeding with the treatment without insulting anyone as a person. © 2011 The Authors. Scandinavian Journal of Caring Sciences

  • 22. Stoltz, Peter
    et al.
    Udén, Giggi
    Willman, Ania
    Support for family carers who care for an elderly person at home- a systematic literature review2004Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 18, nr 2, s. 1-9Artikel i tidskrift (Refereegranskat)
  • 23.
    Stridsman, Caroline
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap.
    Lindberg, Anne
    OLIN studies, Sunderby Hospital.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Fatigue in chronic obstructive pulmonary disease: a qualitative study of peoples experiences2014Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, nr 1, s. 130-138Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BackgroundFatigue is reported to be one of the most common symptoms among people with chronic obstructive pulmonary disease COPD. However, there is hardly any qualitative research describing how fatigue affects people living with this illness.AimTo describe people's experience of fatigue in daily life when living with moderate to very severe COPD.MethodsA purposive sample of 20 people with COPD stages II–IV was recruited from the Obstructive Lung Disease in Northern Sweden COPD study. Data were collected through semi-structured interviews with participants regarding their experience of fatigue. The interviews were subjected to qualitative content analysis.ResultsOne theme was identified: Reconcile with the dimensions of fatigue, and four categories were identified: To understand the reasons of fatigue, To preserve fatigue unexpressed, When fatigue takes control and How to manage fatigue. Fatigue seems to be an always-present feeling, involving the whole body, raising feelings of hopelessness and controlling one's life. It seems to be accepted as a natural consequence of COPD and may therefore remain unexpressed. Further, when experienced with dyspnoea, fatigue becomes even heavier and more difficult to manage. To gain control of fatigue, people plan daily life and continue with physical activities.ConclusionFatigue affects the daily lives of people with COPD. Perceived with dyspnoea, fatigue was described as overwhelming. Most importantly, fatigue seems to be unexpressed to healthcare professionals and relatives.

  • 24.
    Söderberg, Siv
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    A hidden kind of suffering: female patient’s complaints to Patient’s Advisory Committee2012Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 26, nr 1, s. 144-150Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to describe female patients' experiences of dissatisfaction with healthcare. People who have been treated with dignity during healthcare encounters are more prone to report better adherence to treatment and higher satisfaction with their care. Good quality care is commonly described as individualized and related to individual needs. This study has a qualitative approach, as the aim was to describe female patients' experiences of dissatisfaction with healthcare from a first person perspective. A purposive sample of fourteen women was interviewed about their experiences of dissatisfaction with healthcare. The interviews were subjected to a qualitative content analysis. The findings show that the women were treated with indifference when they were being withheld information, felt distrusted, and when they were treated badly they did not receive an apology. The findings also show that the women experienced that they did not feel safe when they had no one liable to turn to within the healthcare when the encounter did not correspond to the women's needs and expectations. The women's experiences of being withheld explanations can be seen as a violation of their dignity and a hidden suffering from care. In conclusion, the study shows the importance of receiving a personal explanation after filing a complaint about healthcare and recommends that clinics that receive a complaint from a patient should contact that patient and provide an individualized explanation

  • 25.
    Zotterman, Anna Nygren
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    District nurses' views on quality of primary healthcare encounters2015Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 29, nr 3, s. 418-425Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Good encounters are fundamental for good and professional nursing care, and can be described as treating patients with respect and protecting their integrity and autonomy. This study describes district nurses' views on quality of healthcare encounters in primary healthcare. A purposive sample of 27 district nurses participated in five focus group interviews. The focus groups interviews were digitally recorded and transcribed verbatim. The interview texts were analysed using a thematic content analysis. The analysis resulted in four themes, including being aware of the importance and difficulties during encounters, being the patient's advocate, being attentive to the unique person and being informed when a meeting turned out poorly. The results show that district nurses believed that encounters formed the basis of their work and it was vital for them to be aware of any difficulties. District nurses found that acting in a professional manner during encounters is the most significant factor, but this type of interaction was sometimes difficult because of stress and lack of time. The district nurses considered themselves to be the patients' advocate in the healthcare system; in addition, the acts of seeing, listening, believing and treating the patient seriously were important for providing good quality care. If a poor encounter occurred between the district nurse and the patient, the district nurses found that it was necessary to arrange a meeting to properly communicate what problems arose during the interaction. The district nurses highlighted that providing an apology and explanation could improve future encounters and establish a better nurse–patient relationship. In conclusion, this study shows the importance of confirming and respecting patients' dignity as the fundamental basis for a good quality encounter in primary healthcare

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