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  • 1. Borg, Christel
    et al.
    Fagerström, Cecilia
    Balducci, Cristian
    Burholt, Vanessa
    Ferring, Dieter
    Weber, Germain
    Wenger, Clare G.
    Holst, Göran
    Hallberg, Ingalill R
    Life satisfaction in 6 European Countries: The Relationship to health, Self-Esteem, and Social and Financial Resources among People (Aged 65-89) with Reduced Functional Capacity2008Ingår i: Geriatric Nursing, ISSN 0197-4572, E-ISSN 1528-3984, Vol. 29, nr 1, s. 48-57Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to investigate how overall health, participation in physical activities, self-esteem and social and financial resources are related to life satisfaction among people (65+) with reduced Activities of Daily Living (ADL) capacity in six European countries. A subsample of the European Study of Adults’ Well-Being (ESAW), consisting of 2195 people with reduced ADL capacity from Sweden, the UK, the Netherlands, Luxembourg, Austria, and Italy, was included. The Older Americans’ Resources Schedule (OARS), the Life Satisfaction Index Z, and the Self-esteem scale were used. In all national samples, overall health, self-esteem and feeling worried, rather than ADL capacity, were significantly associated with life satisfaction. The findings indicate the importance of not only taking the reduction in functional capacity into account, but also the individual’s perception of health and self-esteem, when outlining health care and nursing aimed at improving life satisfaction. The study thus suggests that personal, rather than environmental, factors are important for life satisfaction among people with reduced ADL capacity living in Europe.

  • 2. Fagerström, Cecilia
    et al.
    Borg, Christel
    Balducci, Cristian
    Burholt, Vanessa
    Wenger, Clare G.
    Ferring, Dieter
    Weber, Germain
    Holst, Göran
    Hallberg, Ingalill R
    Life satisfaction and associated factors among people aged 60 years and above in six European countries2007Ingår i: Applied Research in Quality of Life, ISSN 1871-2584, E-ISSN 1871-2576, Vol. 2, s. 33-50Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Life satisfaction is a concept frequently used to measure wellbeing of older people. However, there is still a lack of cross-national comparative research investigating factors associated with life satisfaction. There may be unique and common factors associated with life satisfaction across European countries. This study aimed to investigate life satisfaction among people aged 60–89 years in six European countries in relation to health problems, ADL capacity, self-esteem, social and financial resources. A cross-sectional study was performed, including 7699 people aged 60–89 years, in Sweden, the UK, the Netherlands, Luxemburg, Austria and Italy, participating in the European Study of Adult Wellbeing, using questions from the Older Americans Resources and Services schedule, Multidimensional Functional Assessment Questionnaire, Life Satisfaction Index Z and Rosenberg’s Self-Esteem Scale. Logistic regression analysis was performed to determine factors associated with life satisfaction in the six national samples. In cases where people were less satisfied with their life it was fairly satisfactory and unsatisfactory social contacts (Odds Ratio (OR) 1.5–13.8), poor financial resources (OR 1.7–15.1), feeling greatly hindered by health problems (OR 2.2–5.4) and self-esteem (OR 2.1–5.1) rather than the ability to perform activities of daily living and the extent of social contacts that gave the greatest risk of low life satisfaction in all the six European countries. There were both common and country-specific factors important for life satisfaction in the six European countries. However, the importance of satisfactory social contacts, financial resources, self-esteem and feeling hindered by health problems seems universal in the six included countries and thus important to target in preventive interventions.

  • 3. Fagerström, Cecilia
    et al.
    Holst, Göran
    Hallberg, Ingalill R
    ADL capacity and feeling hindered by health problems at 60 years and above2006Konferensbidrag (Refereegranskat)
    Abstract [en]

    A common consequence of health problems such as diseases is a reduced ability to manage activities in daily living (ADL). Despite ADL capacity is frequently used to identify the impact of health problems on daily living it is still not well known what make people feel hindered in daily life with more or less inability to perform ADL. Such knowledge about feeling hindered by health problems can be useful when planning for interventions in an early stage already when people, regarding to ADL-rating scales have modest impaired ability to perform ADL or even not captured by ADL-scales. The aim of this study was to investigate feeling hindered by health problems among people (n=958) age 60-96 years living in ordinary home in relation to ADL capacity, health problems as well as social and financial resources, sense of coherence and life satisfaction. The data is taken from a questionnaire and a medical examination which were carried out in a baseline survey in one of the four including centres (Blekinge) of the longitudinal multi-centre cohort study The Swedish National study on Ageing and Care (SNAC) (Lagergren et al., 2004). Data indicated that people feel hindered by their health problems before they became impaired in ADL capacity. Feeling greatly hindered by health problems was mainly associated with factors linked to the person’s musculoskeletal system but also to fatigue as well as avoiding being outdoors afraid to fall and had a varying association with feeling hindered in various levels of ADL capacity. The broader question about feeling hindered by health problems used in this study might be an early marker of the impact of functional limitations in daily activities. Combining people’s ADL capacity with the question of feeling hindered may also be a more sensitive way to identify those in need of rehabilitation or other interventions, especially at early stages of health decline compared to investigate ADL capacity solely.

  • 4.
    Fagerström, Cecilia
    et al.
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Holst, Göran
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Hallberg, Ingalill R
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Feeling hindered by health problems and functional capacity at 60 years and above2007Ingår i: Archives of gerontology and geriatrics (Print), ISSN 0167-4943, E-ISSN 1872-6976, Vol. 44, nr 2, s. 181-201Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    It is common to use activities of daily living (ADL) rating scales to identify the impact of health problems such as diseases, impaired eyesight or hearing on daily life. However, for various reasons people with health problems might feel hindered in daily life before limitations in ability to perform ADL have occurred. In addition, there is sparse knowledge of what makes people feel hindered by health problems in relation to their ADL capacity. The aim was to investigate feeling hindered by health problems among 1297 people aged 60–89 living at home in relation to ADL capacity, health problems, life satisfaction, self-esteem, and social and financial resources, using a self-reported questionnaire, including questions from OARS (Older Americans’ Resources and Services schedule), Rosenberg’s self-esteem and Life Satisfaction Index Z. People feeling greatly hindered by health problems rarely had anyone who could help when they needed support, had lower life satisfaction and self-esteem than those not feeling hindered. Feeling hindered by health problems appeared to take on a different meaning depending on ADL capacity, knowledge that seems essential to include when accomplishing health promotion and rehabilitation interventions, especially at the early stages of reduced ADL capacity.

  • 5. Fagerström, Cecilia
    et al.
    Holst, Göran
    Hallberg, Ingalill R
    Feeling hindered by health problems in relation to ADL capacity at 60 years and above2005Konferensbidrag (Refereegranskat)
    Abstract [en]

    Health problems as impaired mobility, eyesight or hearing problems in old age are often associated with reduced ADL (activities of daily living) capacity and as a result people may give up activities that contribute to well-being. However, the knowledge is sparse about the relation between feeling hindered by health problems in relation to ADL capacity, decreased or not. Such knowledge may be useful when outlining interventions to people already when people have no or modest impaired ability to perform ADL. Such information can not be captured through ADL-scales but by an overarching question about feeling hindered in daily living by health problems. Purpose: This study presents data on people’s (n=1524) 60-89 years feeling hindered by health problems in relation to their ability to perform ADL, health problems, social and financial resources, self-esteem and life satisfaction. Method: OARS (Older Americans Resources and Services schedule), Rosenberg’s self-esteem and Life Satisfaction Index Z. Results: People who felt greatly hindered by health problems had rarely someone who could help them when needing support, had lower life satisfaction and self-esteem compared to those not. Different factors were associated with feeling greatly hindered by health problems at different levels of ADL ability. Conclusions: Data from this study suggest that feeling hindered in daily living takes on a different meaning depending on functional capacity and thus preventive and visiting work should start early and be outlined differently depending on their ADL capacity. Also such an overarching question may be useful in detecting those in need of interventions.

  • 6.
    Fagerström, Cecilia
    et al.
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Persson, Helen
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Holst, Göran
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Hallberg, Ingalill R
    Determinants of Feeling Hindered by Health Problems in Daily Living at 60 Years and Above2008Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, nr 3, s. 410-421Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Although the ability to perform activities of daily living (ADL) is frequently used to identify the impact on daily living caused by health problems such as diseases, impaired eyesight or hearing, it is still not well known what makes people feel hindered in daily living with more or less inability to perform ADL. The aim of this study was to investigate feeling hindered by health problems in daily living among people (n = 958, 60-96 years) in relation to ADL capacity, health problems as well as social and financial resources, sense of coherence and life satisfaction. The data are taken from a baseline survey in one of the four included centres (Blekinge) of the longitudinal multicentre cohort study, The Swedish National Study on Aging and Care. The result showed that people felt hindered by their health problems despite no impairment in ADL capacity. Feeling greatly hindered by health problems was associated with factors linked to mobility but also to fatigue, no help when needed, and avoiding being outdoors due to fear of falling. Factors associated with feeling greatly hindered differed depending on whether people were impaired in ADL capacity or not. In people with excellent ADL capacity feeling hindered was associated with picking up things from the floor and rising from a chair and fatigue, whereas avoiding being outdoors, no help when needed and rising from a chair were found to be associated with feeling hindered by health problems among people with impaired ADL capacity. Combining people's ADL capacity with questions about feeling hindered may provide knowledge of determinant factors of feeling hindered in relation to ADL capacity, impaired or not, to identify people in need of rehabilitation or other interventions.

  • 7.
    Gustafsson, Markus
    et al.
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Holst, Göran
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Kristensson, Jimmie
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Willman, Ania
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Bohman, Doris
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Case managers’ experiences of their everyday practice2013Ingår i: European Geriatric Medicine, Venice: Elsevier Masson SAS , 2013, Vol. 4, nr Supplement 1Konferensbidrag (Refereegranskat)
    Abstract [en]

    Introduction.– Today, there is an interest in how Case Management (CM) should be designed to best suit the complex needs of the older people with multi-morbidity. Current research on CM has mainly focused on health care costs and consumption, but the results have been inconsistent and ranging from positive outcomes to no effect. To improve CM, there is need to investigate what mechanisms are important for a successful intervention. To advance this knowledge, there is a necessity for studies investigating the experiences of those practicing CM i.e. Case Managers. There might be unknown factors or interpersonal factors that can contribute to a CM intervention's success or failure. Therefore, the aim of this study was to explore the Case Managers’ experiences of their everyday practice. Methods.– The study design was qualitative and descriptive utilizing an ethnographic approach, consisting of participant observations, a focus group interview and individual interviews with nine Case Managers conducted during 2012/2013. The interviews were recorded and transcribed verbatim and then subjected to content analysis. Results.– Three main themes described Case Managers’ experience of their everyday practice: navigating the older person, working to improve the health care system and being the older persons advocate. Conclusions.– Findings from this study sheds light on the complexity of CM for older people with multi-morbidity, from the experiences of Case Managers. These findings could help in the development of CM models designed for older people with complex health needs.

  • 8.
    Gustafsson, Markus
    et al.
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Kristensson, Jimmie
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Holst, Göran
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Willman, Ania
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Bohman, Doris
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Case managers for older persons with multi-morbidity and their everyday work -- a focused ethnography2013Ingår i: BMC Health Services Research, ISSN 1472-6963, E-ISSN 1472-6963, Vol. 13, nr 496Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background Modern-day health systems are complex, making it difficult to assure continuity of care for older persons with multi-morbidity. One way of intervening in a health system that is leading to fragmented care is by utilising Case Management (CM). CM aims to improve co-ordination of healthcare and social services. To better understand and advance the development of CM, there is a need for additional research that provides rich descriptions of CM in practice. This knowledge is important as there could be unknown mechanisms, contextual or interpersonal, that contribute to the success or failure of a CM intervention. Furthermore, the CM intervention in this study is conducted in the context of the Swedish health system, which prior to this intervention was unfamiliar with this kind of coordinative service. The aim of this study was to explore the everyday work undertaken by case managers within a CM intervention, with a focus on their experiences. Methods The study design was qualitative and inductive, utilising a focused ethnographic approach. Data collection consisted of participant observations with field notes as well as a group interview and individual interviews with nine case managers, conducted in 2012/2013. The interviews were recorded, transcribed verbatim and subjected to thematic analysis. Results An overarching theme emerged from the data: Challenging current professional identity, with three sub-themes. The sub-themes were 1) Adjusting to familiar work in an unfamiliar role; 2) Striving to improve the health system through a new role; 3) Trust is vital to advocacy. Conclusions Findings from this study shed some light on the complexity of CM for older persons with multi-morbidity, as seen from the perspective of case managers. The findings illustrate how their everyday work as case managers represents a challenge to their current professional identity. These findings could help to understand and promote the development of CM models aimed at a population of older persons with complex health needs.

  • 9. Hallberg, Ingalill R
    et al.
    Holst, Göran
    Nordmark, Åsa
    Edberg, Anna-Karin
    Cooperation During Morning Care Between Nurses and Severely Demented Institutionalized Patients1995Ingår i: Clinical Nursing Research, ISSN 1054-7738 , Vol. 4, nr 1, s. 78-104Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Nurse-patient cooperation during morning care in two wards for the care of severely demented patients (107 observations) were analyzed by using a hermeneutic-phenomenological approach. Nurse-patient cooperation was found to be characterized by their acting in mutuality or unilaterality and in or out of pace with each other. When acting in pace and mutuality, the nurse and patient turned to each other as persons as well as to the task. This theme related to confirming nurse actions and actions that provided opportunities for the patient to participate. When acting out of pace and unilaterality, cooperation was mainly task oriented and related to acts of resistance, the use of force, loss of attention or turning to others, or the patient wanted to escape. The findings were interpreted within the contexts of power, empowerment, and powerlessness and may serve as indicators of low- or high-quality nurse-patient cooperation during morning care provided for demented patients.

  • 10.
    Hjelm, Markus
    et al.
    Blekinge Tekniska Högskola, Fakulteten för hälsovetenskaper, Institutionen för hälsa.
    Holmgren, Ann-Charlotte
    Blekinge Tekniska Högskola, Fakulteten för hälsovetenskaper, Institutionen för hälsa.
    Willman, Ania
    Blekinge Tekniska Högskola, Fakulteten för hälsovetenskaper, Institutionen för hälsa.
    Bohman, Doris
    Blekinge Tekniska Högskola, Fakulteten för hälsovetenskaper, Institutionen för hälsa.
    Holst, Göran
    Blekinge Tekniska Högskola, Fakulteten för hälsovetenskaper, Institutionen för hälsa.
    Family members of older persons with multi-morbidity and their experiences of case managers in Sweden: an interpretive phenomenological approach2015Ingår i: International Journal of Integrated Care, ISSN 1568-4156, E-ISSN 1568-4156, Vol. 15, nr Jan-MarArtikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Family members of older persons (75+) with multi-morbidity are likely to benefit from utilising case management services performed by case managers. However, research has not yet explored their experiences of case managers. Objectives: The aim of the study was to deepen the understanding of the importance of case managers to family members of older persons (75+) with multi-morbidity. Design: The study design was based on an interpretive phenomenological approach. Method: Data were collected through individual interviews with 16 family members in Sweden. The interviews were analysed by means of an interpretive phenomenological approach. Results: The findings revealed one overarching theme: “Helps to fulfil my unmet needs”, based on three sub-themes: (1) “Helps me feel secure – Experiencing a trusting relationship”, (2) “Confirms and strengthens me – Challenging my sense of being alone” and (3) “Being my personal guide – Increasing my competence”. Conclusion and discussion: The findings indicate that case managers were able to fulfil unmet needs of family members. The latter recognised the importance of case managers providing them with professional services tailored to their individual needs. The findings can contribute to the improvement of case management models not only for older persons but also for their family members.

  • 11.
    Hjelm, Markus
    et al.
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Holst, Göran
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Willman, Ania
    Bohman, Doris
    Blekinge Tekniska Högskola, Fakulteten för teknikvetenskaper, Institutionen för hälsa.
    Kristensson, Jimmie
    The work of case managers as experienced by older persons (75+) with multi-morbidity – a focused ethnography2015Ingår i: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 15, artikel-id 168Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background

    Complex health systems make it difficult for older persons (75+) with multi-morbidity to achieve continuity of care. Case management could be one way to address this difficulty. Currently, there is a need to extend the knowledge regarding case management as experienced by those utilising the services, namely older persons (75+) with multi-morbidity. The study aimed to explore older persons’ (75+) with multi-morbidity experiences of case managers.

    Methods

    The study design was qualitative and used a focused ethnographic approach. Data was collected through individual interviews with 13 older persons and by participant observations with accompanying field notes, all conducted in 2012–2013.

    Results

    The data revealed four themes illustrating the older persons’ experiences of case managers:

    1) Someone providing me with a trusting relationship; 2) Someone assisting me; 3) Someone who is on my side; and 4) Someone I do not need at present.

    Conclusions

    This study illustrates the importance of establishing trusting relationships between older persons and their case managers in order to truly provide assistance. The older persons valued the case managers acting as informed but unbiased facilitators. The findings could be of help in the development of case management interventions better designed for older persons with multi-morbidity.

  • 12. Holst, Göran
    A family based model for dementia care in Blekinge, Sweden2009Konferensbidrag (Refereegranskat)
    Abstract [en]

    The studies' purpose was to investigate mood/emotional well-being in people with dementia living in their ordinary homes where they are most commonly cared for by their relatives, with special focus on the relationships between mood and stage of dementia, functional dependency and receiving support from a next of kin in daily personal care, and finally, the association between family caregivers feelings of burden, self-reported health, and mood of the patient. Baseline survey from a small longitudinal study, the Dementia in Blekinge Study (DIBS). 64 persons (53 % female) with a suspected or diagnosed dementia disease and 58 family caregivers (68 % female) participated. Data was collected by dementia nurses during a house call. Measurements used were: Mini Mental test and Clocktest (cognitive functioning); Berger scale (grade of dementia); Patient Mood Assessment Scale (mood-emotional well-being); ADL-staircase (dependency in activities); COPE index (career support, health and well-being). The results showed that a person with a moderate dementia who was dependent on help from others for personal care, was more often reported to have a bad mood. 28 % of the informal caregivers giving regular support answered that they quite often, or almost always, experienced it as a burden. There was a significant correlation between age and feeling burdened. Patient's children acting as caregivers more often reported themselves as feeling burdened by the role. Correlation between next of kin’s feelings of burden, and patient’s mood and emotional reactions, was weak.

  • 13. Holst, Göran
    Bridging the communicative gap between a person with dementia and caregivers. A nursing perspective2000Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
  • 14. Holst, Göran
    Livet som en berättelse2002Ingår i: Att möta personer med demens, Lund: Studentlitteratur , 2002, s. 96-106Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 15. Holst, Göran
    Mood in People with Dementia and its Relation to Informal Caregiver Burden: Developing a Model for a Family Care Based Nursing2008Konferensbidrag (Refereegranskat)
  • 16. Holst, Göran
    Mood in people with suspected or diagnosed dementia and its relation to caregiver burden2007Konferensbidrag (Refereegranskat)
    Abstract [en]

    The emotional state of the person with dementia has been described as one important factor for the relatives in the decision making process when for example the need for another form of care has arisen. In order to develop interventions that can enhance wellbeing among persons with dementia and their relatives, it is important to understand how they react and adjust to the situation. It is therefore also important to explore the interrelation between the emotional state among people with early/moderate dementia and the caregiver’s experience of burden. The purpose of the study was to investigate mood in people with dementia, living in their ordinary home. Also to study the relation between mood and gender, age, living alone, stage of dementia, functional dependency and receiving support in daily personal care and finally to study the association between family caregivers feeling of burden, self-reported health and mood of the person receiving help. A sample of 64 persons, 34 women and 30 men, with a suspected or diagnosed dementia disease was included in the study and in 58 of the cases also a next of kin participated. The analysis showed that being dependent on help from others with personal care (PADL) and having a moderate dementia was mostly associated with not being confident. The analysis showed a correlation between feeling burdensome and bad self-reported global health, i.e. a next of kin that reported their health to be bad quite often or almost always fell more often burdensome. The findings indicate that having a moderate dementia and receiving help with such as personal hygiene from a next of kin and/or from formal caregivers has a negative impact on mood. The transition from early over to middle stage of dementia thus seems to be crucial. Maybe not only because of the increased cognitive decline but far more, or combined with, the fact that the person becomes dependent of intimate help from others to maintain daily life. The findings from the study contrast to the stress and coping model often used in dementia research in which people with dementia are described as contributing to emotional problems for those helping them. Thus, next of kin’s, helping a person with dementia to maintain their daily living are maybe not only or first of all stressed because of the role as a helper. The feeling of burden seems more related to the own experience of health.

  • 17. Holst, Göran
    et al.
    Edberg, Anna-Karin
    Wellbeing among people with dementia and their next of kin over a period of 3 years2011Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, nr 3, s. 549-557Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Little is known about the dyadic experience over time of people with dementia and their next of kin. The aim of this study was to investigate the state of mind of people with dementia, their next of kin’s experience of burden and satisfaction, and factors associated with these experiences over a 3-year period. The sample consisted of 32 people with dementia living at home with family caregivers in the south of Sweden. Data were collected during the period 2004–2007 and consisted of patients self reports (GDS), dementia nurse assessment (MMSE, Berger and ADL) and next-of-kin assessment (patient’s state of mind and care provision). Data also consisted of nextof- kin’s self reports concerning health, burden and satisfaction. The result showed that patients’ state of mind was mainly positive at baseline but a deterioration was seen over time in the patient’s mood and cognitive functioning together with an increase in ADLdependency and suspected depression. Dependency in personal ADL entailed a higher risk of being in a negative state of mind. For next of kin the experience of burden increased while satisfaction decreased over the 3 years. The inter-relationship between the patients’ mood and the caregiver’s satisfaction and burden seems to get stronger over time. At baseline caregiver burden was mainly related to the next of kins’ general health and to patient behaviours that were difficult to handle. During the progression of the disease caregiver satisfaction becomes increasingly related to patient state of mind and dependency. There is, however, a need for more research focusing on the specific inter-relational aspects as previous studies have mainly focused on either the situation for the person with dementia or on the caregiver.

  • 18. Holst, Göran
    et al.
    Edberg, Anna-Karin
    Hallberg, Ingalill R
    Nurses narration and reflections of caring for patients with severe dementia as revealed in systematic clinical supervision1999Ingår i: Journal of Aging Studies, ISSN 0890-4065 , Vol. 13, nr 1, s. 89-107Artikel i tidskrift (Refereegranskat)
  • 19. Holst, Göran
    et al.
    Hallberg, Ingalill R
    Exploring the meaning of everyday life, for those suffering from dementia2003Ingår i: American Journal of Alzheimer’s Disease and Other Dementia, ISSN 1533-3175, E-ISSN 1938-2731, Vol. 18, nr 6, s. 359-365Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Living with dementia means struggling to preserve a sense of self, to retain (and reevaluate) one's values in a new situation, and to search for a new way of life. This study explored the meaning of everyday life as expressed by 11 people suffering from dementia. Data were collected through interviews with people in the early stage of a diagnosed dementia disease. The findings indicate that many people with dementia feel shame, sorrow, and sadness when their life with the disease begins but also indicate prospects of a more manageable life. Since the reaction and adjustment to dementia differs from person to person, professional caregivers need to use a case-specific approach in the provision of care.

  • 20. Holst, Göran
    et al.
    Hallberg, Ingalill R
    Gustafson, Lars
    The Relationship of Vocally Disruptive Behaviour and Previous Personality in Severly Demented Institutionalised Patients1997Ingår i: Archives of Psychiatric Nursing, ISSN 0883-9417, E-ISSN 1532-8228, Vol. 11, nr 3, s. 147-154Artikel i tidskrift (Refereegranskat)
  • 21. Holst, Göran
    et al.
    Rennemark, Mikael
    Can communicative problems between caregivers and patients with severe dementia be bridged by help from a close family member?2010Konferensbidrag (Refereegranskat)
    Abstract [en]

    Several studies have shown connections between personality and various kinds of behavioural and psychological symptoms in dementia. It has for example been found that personality traits such as introversion, rigidity, and a tendency to suppress emotions, as remembered retrospectively by a close family member, correlated positively with disturbed communicative behaviors in people with severe dementia. This finding indicates that personality characteristics should be considered in nursing care because they may help a caregiver to understand communicative attempts from a person not able to speak for themselves, i.e. express their feelings. Information from a next of kin about a sick person’s personality may help to bridge communicative gaps in care situations. However, the reliability of such information is not known. The aim of the present study was to evaluate the inter-rater agreement between healthy elderly people`s self-assessment and the assessment made by a next of kin concerning personality and Sense of Coherence (SOC). The participants (n=154) answered questions from the Eysenck personality scale and the Antonovsky SOC scale. The study shows high or moderate agreement in ratings when analysed by means of an intra-class correlation coefficient (range between r =.57 and r = .72) indicating that in general a close relative is able to report on the personality of a next of kin. The inter-rater agreement was high on SOC and Extraversion and somewhat lower on Neuroticism. For Neuroticism, length of time of relationship increased the odds for a good inter-rater agreement. Thus seemingly a next of kin is a reliable informant for the elderly in general and is probably also able to add information useful in the nursing care of people with a severe dementia disease.

  • 22. Holst, Göran
    et al.
    Rennemark, Mikael
    Berglund, Johan
    Vård och omsorg i Karlskrona, personer 65 år och däröver, våren 20022002Rapport (Övrigt vetenskapligt)
  • 23.
    Holst, Göran
    et al.
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Rennemark, Mikael
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Hallberg, Ingalill
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Self and next of kin’s assessment of personality and sense of coherence in elderly people: Implications for dementia care2012Ingår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 11, nr 1, s. 19-30Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Nurses sometimes fail to understand the behaviour of individuals with severe dementia. Information from a next of kin may help to bridge this communicative gap. One factor that influences a person’s reaction to a disease is their personality and ability to cope with stress. The aim of this study was to evaluate the inter-rater agreement between healthy elderly people’s self-assessment and the assessment made by a next of kin concerning personality and sense of coherence. The participants (n¼154) answered questions from the Eysenck Personality Inventory (EPI) and the Antonovsky Sense of Coherence (SOC) scale. The study shows high or moderate agreement in ratings when analysed by means of an intra-class correlation coefficient (range between r¼.57 and r¼.72) and the results indicate that in general a close relative is able to report on the personality of a next of kin. The inter-rater agreement was high on SOC and extraversion and somewhat lower on neuroticism. For neuroticism, length of time in the relationship increased the odds for a good inter-rater agreement. Thus, seemingly a next of kin is a reliable informant for the elderly in general and is probably also able to add information useful in the nursing care of people with dementia.

  • 24. Holst, Göran
    et al.
    Willman, Ania
    Fagerström, Cecilia
    Borg, Christel
    Hellström, Ylva
    Borglin, Gunilla
    Quality of care: Prevention of pressure ulcers – Nursing students facilitating evidence-based practice2010Ingår i: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 30, nr 1, s. 40-42Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This development project was aimed at engaging nursing students in a project targeting the prevention and reduction of pressure ulcers on an education based hospital ward. An intervention was implemented based on systematic assessment, skin observation, together with training and educational sessions, i.e. on how to make risk assessments and how to prevent and treat a pressure ulcer, were carried out. The project demonstrated the importance of offering nursing students an environment for clinical practice which supports them in participating and developing patient care starting from Evidence-Based Practice. During the project no patients developed pressure ulcers while on the ward. The opportunity to act as facilitators of evidence-based methods was found to enhance student ability to draw conclusions and make connections between quality of care and end result.

  • 25. Lagergren, Mårten
    et al.
    Fratiglioni, Laura
    Hallberg, Ingalill R
    Berglund, Johan
    Elmståhl, Sölve
    Hagberg, Bo
    Holst, Göran
    Rennemark, Mikael
    Sjölund, Britt-Marie
    Thorslund, Mats
    A longitudinal study integrating population, care and social services data. The Swedish National study on Aging and Care (SNAC).2004Ingår i: Aging Clinical and Experimental Research, ISSN 1594-0667, E-ISSN 1720-8319, Vol. 16, nr 2, s. 158-168Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND AND AIMS: A large, national, long-term, longitudinal, multi-purpose study has been launched in Sweden--the Swedish National study on Aging and Care (SNAC). The study involves four research centers collecting data in four different areas of Sweden. METHODS: The study consists of two parts: the population part and the care and services part. In the population part, a large, representative panel of elders in different age cohorts is followed over time to record and describe the aging process from different aspects. In the care and services part, a systematic, longitudinal, individually-based collection of data is performed concerning provision of care and services together with functional ability, specific health care problems, and living conditions of the recipients living in the area. RESULTS: The data collection in the population part of the SNAC is not yet completed. In the present article, some preliminary results are reported from the care and services part. These pertain to comparisons between the participating areas with respect to the prevalence of disability among those receiving care and social services in their ordinary homes and those receiving care in special accommodation. A comparison is also presented with regard to the amount of home help provided to subjects with a given disability. CONCLUSIONS: This project has several advantages. It is expected to generate a rich data base relevant for future research on aging and care and to have a direct impact on the future Swedish system of care and services for the elderly.

  • 26. Lindström, V.
    et al.
    Andersson, K.
    Lintrup, Mats
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Holst, Göran
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Berglund, Johan
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Prevalence of sleep problems and pain among the elderly in Sweden2012Ingår i: The Journal of Nutrition, Health & Aging, ISSN 1279-7707, E-ISSN 1760-4788, Vol. 16, nr 2, s. 180-83Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background/Objectives: Sleep problems and pain are common among the elderly and have been shown to affect quality of life. The objectives were to determine the prevalence of sleep problems and pain among the elderly and to compare the two factors in relation to age and gender. Design: A cross-sectional study based on baseline material collected by the Swedish National Study on Aging and Care in Blekinge (SNACBlekinge). Setting: The data were gathered from questionnaires distributed between the years 2001 and 2003 in the municipality of Karlskrona, Sweden. Participants: The participants comprised 1402 Swedish men and women aged 60-96. Results: Of all the participants 70 percent met the criteria for sleep problems and 62 percent indicated some experience of pain during the preceding 4 weeks. Both sleep problems and pain were more frequent among women than men and sleep problems tended to be more common with increasing age. Among the participants who experienced pain during the preciding 4 weeks 77 percent suffered from sleep problems. Conclusions: Sleep problems and pain are common among older people. Furthermore it is common to suffer from sleep problems when pain has been experienced during the preciding 4 weeks.

  • 27. Rennemark, Mikael
    et al.
    Holst, Göran
    Fagerström, Cecilia
    Halling, Anders
    Factors related to frequent usage of the primary healthcare services in old age: findings from The Swedish National Study on Aging and Care2009Ingår i: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 17, nr 3, s. 304-311Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    People aged 60 or more are the most frequent users of healthcare services. In this age range, however, both frequent and infrequent users can be found. Frequent users have high rates of illnesses. Previous research has found that the frequency may be influenced also by psychological and social factors. The aim of this study was to investigate to what degree such factors add to the explanation of differences in number of visits to a physician. A crosssectional study was conducted with a random sample consisting of 1017 individuals, aged 60 to 78 years, from the Blekinge part of the Swedish National Study on Aging and Care database. The data were collected during 2001 to 2003. Hierarchical logistic regression analyses were used with frequent (three visits or more during a year) and infrequent use as a dichotomous dependent variable. The final statistical analyses included 643 individuals (63% of the sample). Independent variables were sense of coherence (SOC), internal locus of control, education level and social anchorage. Control variables were age, gender, functional ability and comorbidity. The results showed that comorbidity was most strongly related to frequent use [adjusted odds ratio (OR) = 8.17, 95% confidence interval (CI) 5.54–12.04]. In addition, SOC and internal locus of control had small, but significant effects on the odds of being a frequent user (adjusted OR = 1.03, 95% CI 1.00–1.06 and adjusted OR = 1.14, 95% CI 1.02–1.27, espectively). The lower the SOC and the internal locus of control were, the higher were the odds of frequent use. Education level and social anchorage were unrelated to frequency of use. The results indicate that frequent healthcare services users are more ill than infrequent users. Psychological factors influence the use only marginally, and social factors as well as age and gender are not by themselves reason for frequent healthcare services use.

  • 28. Rennemark, Mikael
    et al.
    Holst, Göran
    Fagerström, Cecilia
    Halling, Anders
    What makes old people utilise the health care services?2007Konferensbidrag (Refereegranskat)
  • 29. Taube, Elin
    et al.
    Kristensson, Jimmie
    Midlöv, Patrik
    Holst, Göran
    Blekinge Tekniska Högskola, Sektionen för hälsa.
    Jakobsson, Ulf
    Loneliness Among Older People: Results from the Swedish National Study on Aging and Care – Blekinge2013Ingår i: Open Geriatric Medicine Journal, ISSN 1874-8279, Vol. 6, nr 1, s. 1-10Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Abstract: Objectives: To investigate the prevalence and predictors of loneliness in older people (aged 78+) over a sixyear period. Method: The sample (n=828) was drawn from the Swedish National Study on Aging and Care and the respondents were followed up at three and six years. Data were collected by means of structural interviews with supplementary questionnaires. Results: Half of the respondents reported that they felt lonely sometimes or more often. Women, widows/-ers living alone were more prone to report loneliness. Both independent associated factors and predictors were identified showing that loneliness is associated with and predicted by both physical and psychosocial outcomes. Discussion: Loneliness is common among older people and seems to be a steady state affected mainly by psychological and psychosocial factors such as personality, satisfaction with life, risk of depression, lack of friends and loss of spouse. Psychosocial interventions targeting emotional loneliness and social isolation are suggested.

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