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  • 1.
    Anderberg, Peter
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Abrahamsson, Linda
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Sanmartin Berglund, Johan
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Older People's Use and Nonuse of the Internet in Sweden2020In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 17, no 23, article id 9050Article in journal (Refereed)
    Abstract [en]

    The use of the internet has considerably increased over recent years, and the importance of internet use has also grown as services have gone online. Sweden is largely an information society like other countries with high reported use amongst European countries. In line with digitalization development, society is also changing, and many activities and services today take place on the internet. This development could potentially lead to those older persons who do not use the internet or do not follow the development of services on the internet finding it difficult to take part in information and activities that no longer occur in the physical world. This has led to a digital divide between groups, where the older generations (60+), in particular, have been affected. In a large study of Sweden's adult population in 2019, 95 percent of the overall population was said to be internet users, and the corresponding number for users over 66 years of age was 84%. This study shows that the numbers reported about older peoples' internet use, most likely, are vastly overestimated and that real use is significantly lower, especially among the oldest age groups. We report that 62.4% of the study subjects are internet users and that this number most likely also is an overestimation. When looking at nonresponders to the questionnaire, we find that they display characteristics generally attributed to non-use, such as lower education, lower household economy, and lower cognitive functioning.

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    Older People's Use and Nonuse of the Internet in Sweden
  • 2.
    Andersson, Ewa K.
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Dellkvist, Helen
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Johansson, Ulrika Bernow
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health. Blekinge Inst Technol, Dept Hlth, Karlskrona, Sweden.;Karlskrona Municipal, Karlskrona, Sweden..
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care: An interview study2019In: Nursing Open, E-ISSN 2054-1058, Vol. 6, no 2, p. 276-282Article in journal (Refereed)
    Abstract [en]

    Aim The aim of this study was to describe relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care. Design An explorative descriptive qualitative design was used. Methods The data were collected using semi-structured interviews with a purposeful sample of eight relatives and analyzed using a qualitative content analysis. Results Results show that creating and sharing the life story of a close family member could help relatives handle grief and stress. It was perceived as an important, yet difficult, task to ensure that the close family member got good quality care. The creation of a meaningful life story takes time and requires cooperation with family members and other significant people.

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  • 3.
    Andersson, Ewa K.
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health. Blekinge Institute of Technology, Faculty of Health Sciences, Department of Health. Blekinge Institute of Technology, School of Health Science.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Younger persons' and their next of kin's experiences of cardiac care during the first year following a myocardial infarction2017In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 16, no S1, p. S37-S38Article in journal (Other academic)
  • 4.
    Andersson, Ewa K.
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Hjelm, Markus
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Care experiences of younger people and next of kin following myocardial infarction2020In: British Journal of Cardiac Nursing, ISSN 1749-6403, E-ISSN 2052-2207, Vol. 15, no 12, p. 1-11Article in journal (Refereed)
    Abstract [en]

    Background/Aims Coronary heart diseases, including myocardial infarction, remain a major health problem worldwide. Little is known about the cardiac care experiences post myocardial infarction of younger people and their next of kin. This study aimed to describe the cardiac care experiences of post-myocardial infarction younger people (<55 years old) and their next of kin. Method This study employed an exploratory inductive qualitative design involving individual interviews with younger people (n=17) and their next of kin (n=13). Results Three categories were identified and patients were deemed to be in need of: tailored information, recognition or a post-discharge rehabilitation plan Conclusions Findings demonstrated the importance of using the experiences of younger people and their next of kin as the starting point when planning care and cardiac rehabilitation. Health professionals must systematically and purposefully provide person-centred care, both in hospital and post-discharge settings. Next of kin must be regarded as an important resource in post-myocardial infarction care for younger people, as they tend to be engaged in providing their relatives with support, which is valuable for the recovery of young people post myocardial infarction. Further research is warranted to investigate what makes person-centred interventions directed towards post-myocardial infarction younger people and their next of kin effective.

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  • 5.
    Andersson, Lena
    et al.
    Department of Geriatrics, Piteå Älvdal Hospital.
    Burman, Marie
    Department of Orthopaedics, Piteå älvdal Hospital.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Experiences of caretime during hospitalization in a medical ward: older patients' perspective2011In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, no 4, p. 646-652Article in journal (Refereed)
    Abstract [en]

    he population is ageing the world over, and there is an increasing prevalence of chronic illness and complex conditions. Older people are at greater risk of having several complications than the general population, leading to more time spent in hospital and an increased risk of readmission. The most specific need of older patients is often the multiple need of care. The aim of this study was to describe older patients’ experiences of caretime during a hospitalization in a medical ward. Data were collected with semi-structured interviews with nine older patients, and analysed using qualitative thematic content analysis. The analysis resulted in two themes and five categories. The results show that caretime during hospitalization includes a lot of waiting and that patients manage the waiting in different ways. The results also point out the importance of patients developing good relationships with professionals since good relations creates feelings of security and can reduce anxiety and fear during a hospital stay. The patients pointed out the importance of being more involved in their own care and asked for more detailed information about the hospital stay. The results revealed that information makes patients’ more secure and safe during a hospitalization and makes them participate and affect their own care and treatment more.

  • 6.
    Axén, Anna
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Taube, Elin
    Malmö University.
    Sanmartin Berglund, Johan
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Loneliness in Relation to Social Factors and Self-Reported Health Among Older Adults: A Cross-Sectional Study2023In: Journal of Primary Care & Community Health, ISSN 2150-1319, E-ISSN 2150-1327, Vol. 14Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Loneliness is described as a public health problem and can be both a consequence of aging and a cause of ill health. Lonely older adults tend to have difficulties making new social connections, essential in reducing loneliness. Loneliness often varies over time, but established loneliness tends to persist. Maintaining good health is fundamental throughout the life course. Social connections change with aging, which can contribute to loneliness. AIM: This study aimed to investigate loneliness in relation to social factors and self-reported health among older adults. METHOD: A cross-sectional research design was used based on data from the Swedish National Study on Aging and Care, Blekinge (SNAC-B), from February 2019 to April 2021. Statistical analysis consisted of descriptive and inferential analysis. RESULTS: Of n = 394 participants, 31.7% (n = 125) stated loneliness. Close emotional connections were necessary for less loneliness. Loneliness was more common among those who did not live with their spouse or partner and met more rarely. Furthermore, seeing grandchildren and neighbors less often increased loneliness, and a more extensive social network decreased loneliness. CONCLUSION: This study underlined the importance of social connections and having someone to share a close, emotional connection with to reduce loneliness.

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  • 7.
    Christel, Borg
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Tell, Johanna
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Lindberg, Terese
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Nilsson, Lina
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Olsson, Anki
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Forsbrand, Malin
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Problem-based learning with digitals tools in the nursing programme during the Covid-19 pandemic2022In: Högre Utbildning, E-ISSN 2000-7558, Vol. 12, no 2, p. 117-122Article in journal (Refereed)
    Abstract [en]

    During the spring 2019, the prerequisites for conducting education were changed due to the pandemic. For higher education in Sweden almost all education switches on to digital education. Nursing education has focus on both theoretical and practical courses, which is a challenge for digital or distance education. Furthermore, the nursing programme at the studied university used problem-based learning (PBL), with base-groups at campus. Instead of physical meetings at campus, the base-groups took part with digital tools. The impact of base-groupsmeeting with digital tools are important to reflect on, especially since the education and learning of future probably will be more hybrid. © 2022 Christel Borg, Johanna Tell, Terese Lindberg, Lina Nilsson, Anki Olsson, Malin Forsbrand & Lisa Skär.

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  • 8.
    Christiansen, Line
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Lindberg, Catharina
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Sanmartin Berglund, Johan
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Anderberg, Peter
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Using Mobile Health and the Impact on Health-Related Quality of Life: Perceptions of Older Adults with Cognitive Impairment2020In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 17, no 8, article id 2650Article in journal (Refereed)
    Abstract [en]

    Digital health technologies such as mobile health (mHealth) are considered to have the potential to support the needs of older adults with cognitive impairment. However, the evidence for improving health with the use of mHealth applications is of limited quality. Few studies have reported on the consequences of technology use concerning the older adults' quality of life. The purpose of this study was to describe perceptions of mHealth and its impact on health-related quality of life (HRQoL) among older adults with cognitive impairment. The study was conducted using a qualitative design with a phenomenographic approach. A total of 18 older participants with cognitive impairment were interviewed. The interviews were analyzed in order to apply phenomenography in a home-care context. The results showed variations in the older adults' perceptions that were comprised within three categories of description; Require technology literacy, Maintain social interaction, and Facilitate independent living. In conclusion, the development and design of mHealth technologies need to be tailored based on older adults´ needs in order to be understood and perceived as useful in a home-care context. For mHealth to support HRQoL, healthcare should be provided in a way that encourages various forms of communication and interaction.

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    Using Mobile Health and the Impact on Health-Related Quality of Life: Perceptions of Older Adults with Cognitive Impairment
  • 9.
    Christiansen, Line
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health. Blekinge Inst Technol, Karlskrona, Sweden..
    Sanmartin Berglund, Johan
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health. Blekinge Inst Technol, Karlskrona, Sweden..
    Anderberg, Peter
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health. Blekinge Inst Technol, Karlskrona, Sweden.;Univ Skovde, Skovde, Sweden..
    Cellek, Selim
    Anglia Ruskin Univ, GBR.
    Zhang, Jufen
    Anglia Ruskin Univ, GBR.
    Lemmens, Evi
    Univ Coll Leuven Limburg, BEL.
    Garolera, Maite
    Consorci Sanitari Terrassa, Brain Cognit & Behav Clin ReBarcelona, ESP.
    Mayoral-Cleries, Fermin
    Reg Univ Hosp Malaga, ESP.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health. Blekinge Inst Technol, Karlskrona, Sweden..
    Associations Between Mobile Health Technology use and Self-rated Quality of Life: A Cross-sectional Study on Older Adults with Cognitive Impairment2021In: Gerontology and geriatric medicine, E-ISSN 2333-7214, Vol. 7Article in journal (Refereed)
    Abstract [en]

    Background: Quality of life (QoL) is affected even at early stages in older adults with cognitive impairment. The use of mobile health (mHealth) technology can offer support in daily life and improve the physical and mental health of older adults. However, a clarification of how mHealth technology can be used to support the QoL of older adults with cognitive impairment is needed. Objective: To investigate factors affecting mHealth technology use in relation to self-rated QoL among older adults with cognitive impairment. Methods: A cross-sectional research design was used to analyse mHealth technology use and QoL in 1,082 older participants. Baseline data were used from a multi-centered randomized controlled trial including QoL, measured by the Quality of Life in Alzheimer's Disease (QoL-AD) Scale, as the outcome variable. Data were analyzed using logistic regression models. Results: Having moderately or high technical skills in using mHealth technology and using the internet via mHealth technology on a daily or weekly basis was associated with good to excellent QoL in older adults with cognitive impairment. Conclusions: The variation in technical skills and internet use among the participants can be interpreted as an obstacle for mHealth technology to support QoL.

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    Associations Between Mobile Health Technology use and Self-rated Quality of Life
  • 10.
    Christiansen, Line
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Sanmartin Berglund, Johan
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Lindberg, Catharina
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Anderberg, Peter
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Health-related quality of life and related factors among a sample of older people with cognitive impairment2019In: Nursing Open, E-ISSN 2054-1058, Vol. 6, no 3, p. 849-859Article in journal (Refereed)
    Abstract [en]

    Aim: This study aimed to identify factors affecting health-related quality of life (HRQoL) of older adults with cognitive impairment and to describe the association of these factors with different components of HRQoL. Design: A cross-sectional, descriptive research design was used. Methods: Data were collected from 247 individuals aged 60 years and older from a Swedish longitudinal cohort study. The Short-Form Health Survey-12 (SF-12) and EuroQol (EQ-5D) were used to assess HRQoL. The data were analysed using descriptive and comparative statistics. Results: The present study identified several factors that influenced HRQoL of older adults with cognitive impairment. The results of a multiple logistic regression analysis revealed that the following factors were associated with physical and mental HRQoL: dependency in activities of daily living (ADL), receiving informal care and feelings of loneliness and pain. © 2019 The Authors. Nursing Open published by John Wiley & Sons Ltd.

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  • 11.
    Eivazzadeh, Shahryar
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Sanmartin Berglund, Johan
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Anderberg, Peter
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Ethical Challenges of Evaluating Health Information SystemsManuscript (preprint) (Other academic)
    Abstract [en]

    Background

    Evaluating and researching health information systems are interventions of their kind and might lead to ethical complexities and challenges. Most of those challenges are inherited from the more general fields of research and evaluation, health studies, and information systems studies. Beyond those challenges, this field has its particular traits, regarding the involved stakeholders, required values or qualities, or the process which can raise field-specific or context-specific ethical challenges.

    Objectives

    This paper reports and discusses some of the challenges of evaluating and researching health information systems by taking a systematic approach in finding, postulating, and analyzing them.

    Method

    Through a scoping review, a set of ethical challenges, regarding the evaluation and research of health information systems, were extracted. From the same set of articles, the acting entities, including stakeholders and artefacts, were identified. From a sample of seven cases of health information systems, a set of demanded impact qualities were extracted. From the literature, the evaluation stages were elicited. The acting entities, required qualities, and the evaluation stages were combined to create a three-dimensional space. The space contained the ethical challenges extracted from the scoping review and helped to postulate more items.

    Results

    The final list of identified items contains 20 possible ethical challenges that can be caused or raised by evaluating or researching health information systems and technologies. The ethical challenges are discussed, based on their probable stage of occurrence. The three-dimensional space and the method of populating it is proposed as an effective method in similar cases of discovering ethical challenges.

    Conclusion

    Evaluating or researching health information systems can raise ethical challenges, that we have identified 20 of them in this article. All the challenges were discussed, such as the actual value of evaluation, breach of privacy, risks for safety, problems with usability and accessibility, conflict of interests, problems with the informed consent, and miscommunication. The novel approach for elicitation of the ethical challenges introduced in this article might be applied in other similar studies.

  • 12.
    Enlof, Per
    et al.
    Univ Gothenburg, SWE.
    Romare, Charlotte
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Jildenstal, Pether
    Univ Gothenburg, SWE.
    Ringdal, Mona
    Univ Gothenburg, SWE.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Smart Glasses for Anesthesia Care: Initial Focus Group Interviews with Specialized Health Care Professionals2021In: Journal of Perianesthesia Nursing, ISSN 1089-9472, E-ISSN 1532-8473, Vol. 36, no 1, p. 47-53Article in journal (Refereed)
    Abstract [en]

    Purpose: Smart glasses are a kind of wearable technology that gives users sustained, hands-free access to data and can transmit and receive information wirelessly. Earlier studies have suggested that smart glasses have the potential to improve patient safety in anesthesia care. Research regarding health care professionals' views of the potential use of smart glasses in anesthesia care is limited. The purpose of this study was to describe anesthesia health care professionals' views of smart glasses before clinical use. Design: A qualitative descriptive study. Methods: Data were collected from focus group interviews and analyzed using thematic content analysis. Findings: Three categories of participants' views of smart glasses were created during the analysis: views of integrating smart glasses in clinical setting; views of customized functionality of smart glasses; and views of being a user of smart glasses. One theme, striving for situational control, was identified in the analysis. Conclusions: Smart glasses were seen as a tool that can impact and improve access to patient-related information, and aid health care professionals in their struggle to gain situational control during anesthesia care. These are factors related to increased patient safety. (c) 2020 American Society of PeriAnesthesia Nurses. Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).

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  • 13.
    Gyllensten, Amanda Lundvik
    et al.
    Lund University, Department of Physical Therapy.
    Skär, Lisa
    Miller, Michael
    Department of Clinical Sciences, Division of Rehabilitation Medicine, Lund university.
    Gard, Gunvor
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Embodied identity: a deeper understanding of body awareness2010In: Physiotherapy Theory and Practice, ISSN 0959-3985, E-ISSN 1532-5040, Vol. 26, no 7, p. 439-446Article in journal (Refereed)
    Abstract [en]

    The aims of this study were to explore and generate an understanding of the meaning of body awareness through explanations of the experience of body awareness given by professionals and patients in psychiatric rehabilitation. A total of 20 strategically selected healthy informants were interviewed individually and in groups. Thirteen previous interviews with physiotherapists and 11 previous interviews with patients in psychiatric rehabilitation, describing their experiences of body awareness therapy and its effects were reanalyzed and included in the data for this study; in all 44 informants were included. Grounded theory methods guided the data construction and analysis. A theoretical understanding was conceptualised from which a core category of body awareness emerged: the embodied identity. This core category was related to two categories: living in the body and living in relation to others and in society. The subcategory "living in the body" was conceived as an important aspect to become more aware of the body and to experience oneself fromwithin in order to recognize one's needs. A key point was the fact that bodily experiences always exists in the present moment. The experience of the body, the balance, and stability of the physical self were basic experiences that were connected to the conception of well-being and control. To understand one's emotions and needs through the awareness of the body were understood as the base for self-confidence, trust in one-self, and the ability to take care of oneself and one's needs physically and mentally. The subcategory "living in relation to others and in society" was conceived as an important aspect for the embodied self to interact with others and for societal participation. Working with the body in physiotherapy practice should include an understanding that body awareness is inseparable from the identity and may have an impact on the health of the individual. This implies that interventions to address problems in body awareness should be integrated into physiotherapy practice.

  • 14.
    Holst, Adelheid
    et al.
    Faculty of Professional Studies Nord University Bodø, NOR.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Formal caregivers' experiences of aggressive behaviour in older people living with dementia in nursing homes: A systematic review2017In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 12, no 4, article id e12158Article in journal (Refereed)
    Abstract [en]

    Aim: The purpose of this study was to investigate formal caregivers' experiences of aggressive behaviour in older people living with dementia in nursing homes. Background: Aggressive behaviour symptoms among older people living with dementia are reported to be prevalent. As aggressive behaviour includes both verbal and physical behaviours, such as kicking, hitting and screaming, it causes an increased burden on formal caregivers. Professionals experiencing this aggression perceived it as challenging, causing physical and psychological damage, leading to anger, stress and depression. Methods: A systematic review was conducted. A search of published research studies between 2000 and 2015 was conducted using appropriate search terms. Eleven studies were identified and included in this review. Results: The analysis resulted in four categories: formal caregivers' views on triggers of aggression, expressions of aggression, the effect of aggressive behaviours on formal caregivers and formal caregivers' strategies to address aggression. The results show that aggressive behaviour may lead to negative feelings in formal caregivers and nursing home residents. Conclusion: The results of this study suggest that having the ability to identify triggers possibly assists caregivers with addressing aggressive behaviour. Aggressive behaviour might also affect quality of care. Implications for practice: Results from this systematic review indicate that caregivers prefer person-centred strategies to handle aggressive behaviour among older people, while the use of pharmaceuticals and coercion strategies is a last resort. © 2017 John Wiley & Sons Ltd.

  • 15.
    Isaksson, Gunilla
    et al.
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Josefsson, Staffan
    Neurotec Department, Division of Occupational Therapy, Karolinska Institute, Huddinge.
    Lexell, Jan
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    To regain participation in occupations through human encounters: narratives from women with spinal cord injury2007In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 29, no 22, p. 1679-1688Article in journal (Refereed)
    Abstract [en]

    Purpose. To gain an understanding of how women with spinal cord injury (SCI) experienced human encounters in occupations and how these influenced their participation. Method. The data were collected through two or three in-depth interviews with 13 women (age 25 - 61 years) with SCI. Data analysis was carried out by using a paradigmatic analysis of narrative data, followed by an interpretation based on a narrative theory. Results. The results showed a complexity where the women's experiences and acting in human encounters changed over time. In these human encounters the women struggled with conflicts, supported other persons that were insecure and revaluated their apprehension about persons in their social network. These multidimensional human encounters thereby enabled them to regain participation in occupations. Conclusions. This shows that human encounters are important for persons with disabilities so they can restructure their occupational identity and their needs for participation in occupations. The study also showed that the use of narratives as a tool within rehabilitation could lead to an increased understanding of the subjective changes that occur over time for a person with a disability

  • 16.
    Isaksson, Gunilla
    et al.
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Josephsson, Staffan
    Karolinska institute, Neurobiology Care Sciences and Society, Division of Occupational Therapy.
    Lexell, Jan
    Luleå tekniska universitet, Institutionen för hälsovetenskap.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Men's experiences of giving and taking social support after their wife's spinal cord injury2008In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 15, no 4, p. 236-246Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to gain an understanding of how men living with women with spinal cord injury (SCI) experienced and acted when they were giving and taking social support to and from their wives and other persons in their social network. Another aim was to give some possible explanations of the complex process of change that they went through. Data were collected through in-depth interviews with four men and field notes. To describe the men's subjective experiences and the process of change, a narrative approach inspired by Polkinghorne was used. The analyses resulted in one story that included the four men's experiences and action. The story showed that when the men went through a process of change, they used and needed both emotional and practical support to handle their new life situation. Furthermore, the men's experiences and action against social support changed over time. This indicated that, through narratives from spouses, professionals within rehabilitation could understand the process of change they went through after their partner's sudden injury, and support them to find strategies to handle their changed life situation. To give some possible explanations for the men's experiences and action during the process of change, the findings are discussed in relation to theories concerning adaptation and coping

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  • 17.
    Isaksson, Gunilla
    et al.
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Josephsson, Staffan
    Karolinska institutet, Sektionen för arbetsterapi.
    Lexell, Jan
    Luleå tekniska universitet, Institutionen för hälsovetenskap.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    To regain participation in occupations through human encounters: narratives from women with spinal cord injury2008Conference paper (Other academic)
  • 18.
    Isaksson, Gunilla
    et al.
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Lexell, Jan
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Social support provides motivation and ability to participate in occupation2007In: OTJR (Thorofare, N.J.), ISSN 1539-4492, E-ISSN 1938-2383, Vol. 27, no 1, p. 23-30Article in journal (Refereed)
    Abstract [en]

    In this study, a qualitative perspective of how 13 women (aged 25 to 61 years) with spinal cord injury perceive the importance of social support for their participation in occupation is presented. The data were collected through repeated in-depth interviews and field notes, and the analysis used a grounded theory approach. The women needed both emotional and practical support, which was important in a time perspective and motivated them to participate in occupation. The women needed to receive support soon after the injury, but after a period of time they needed to give and receive support in a reciprocal fashion. Social support is therefore an effective rehabilitation strategy that can motivate people with disabilities to participate in meaningful occupation. The importance of social support for a person's motivation and ability to participate in occupation expands our knowledge of the relationship between individuals, their social environment, and occupation.

  • 19.
    Isaksson, Gunilla
    et al.
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Lexell, Jan
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Skär, Lisa
    Josephsson, Staffan
    Institutionen Neurotec, Sektionen för arbetsterapi, Karolinska institutet.
    Projekt: Det sociala nätverkets betydelse för delaktighet i dagliga aktiviteter - Erfarenheter från kvinnor med ryggmärgsskada och deras män2010Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Projektets övergripande syfte  Syftet med detta projekt var att få en fördjupad kunskap om och förståelse för upplevelsen av den sociala miljöns betydelse för delaktighet i dagliga aktiviteter hos kvinnor med en ryggmärgsskada och deras män samt om upplevelsen förändrades över tid.   Kort beskrivning av projektet  Projektet fokuserar på betydelsen av det sociala nätverket och dess relation till aktivitet och hälsa inom rehabilitering och arbetsterapi. Utgångspunkten var att det behövs en ökad kunskap om hur personer med funktionshinder upplever betydelsen av socialt stöd från det sociala nätverket eftersom en framgångsrik rehabilitering förutsätter att en person med funktionshinder upplever socialt stöd från det sociala nätverket. Målgruppen för att belysa detta har i projektet varit kvinnor som drabbats av en ryggmärgsskada, då de ofta får omfattande funktionshinder med förändrade vanor vid aktivitetsutförande samt förändrade relationer i deras sociala nätverk. Vidare för att kunskap om kvinnor med ryggmärgsskada är begränsad. I projektet har även män som var sammanboende med kvinnor med en ryggmärgsskada ingått. Metodologiskt har projektet en kvalitativ inriktning där deltagarna intervjuats om deras upplevelser av det sociala nätverkets betydelse för delaktighet i vardagen från strax före skadan fram till idag. Resultaten visar att över tid utvecklades ett förändrat samspel mellan kvinnorna och deras sociala nätverk som influerade deras delaktighet i dagliga aktiviteter. Resultatet påvisade även betydelsen av berättelser för att fånga dynamiken och komplexiteten i den förändringsprocess som både kvinnorna och männen som var sammanboende med dem gick igenom. Vidare hur klient-centrerad praxis som inkluderar även anhöriga kan utveckla en djupare förståelse för dynamiken och samspelet mellan personen, aktiviteter och socialt samspel.  Detta forskningsprojekt kan därför tillföra arbetsterapeuter, men även annan personal inom rehabilitering, en ökad kunskap om den sociala miljöns betydelse för utförandet av aktiviteter i det dagliga livet. 

  • 20.
    Isaksson, Gunilla
    et al.
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Social support provides motivation and ability to participate in occupation2008Conference paper (Other academic)
  • 21.
    Isaksson, Gunilla
    et al.
    Luleå tekniska universitet, Hälsa och rehabilitering.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Lexell, Jan
    Women's perception of changes in the social network after a spinal cord injury2005In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 27, no 17, p. 1013-1021Article in journal (Refereed)
    Abstract [en]

    PURPOSE: To describe how women with a spinal cord injury (SCI) perceived changes in the social network, and how these changes affected their ability to participate in occupation. METHOD: Thirteen women, aged 25 to 61 years, with a SCI were interviewed twice. The interviews focused on their ability to participate in occupation, their relations with individuals within the social network, and changes in the social network following the SCI. The analysis was carried out using qualitative content analysis. RESULTS: The women described an emotional need for social support after the SCI to participate in occupation. This was a new experience that required time to adapt to. The women also described a need for practical social support from the social network members to manage meaningful occupation. After the SCI, the women had developed new habits through close cooperation with members in the social network. The women felt that they had become more responsible for the development of their relations. Many relations had improved after the SCI, while some had decreased. The women had also developed new relations with other persons with disabilities. CONCLUSIONS: The women perceived substantial changes in the social network following the SCI, which in several ways affected their ability to participate in occupation. To adapt to their new life situation, the women gradually developed different strategies. The results point out the need to identify persons in the social network that women with SCI develop relations with, and integrate them in the rehabilitation process.

  • 22.
    Juuso, Päivi
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Living with a double burden: Meanings of pain for women with fibromyalgia2011In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 6, no 3Article in journal (Refereed)
    Abstract [en]

    Living with fibromyalgia (FM) means living with a chronic pain condition that greatly influences daily life. The majority of people with FM are middle-aged women. The aim of this study was to elucidate meanings of pain for women with FM. Fifteen women with FM were interviewed about their pain experiences and a phenomenological hermeneutic interpretation was used to analyse the interview texts. The findings show that meanings of pain for women with FM can be understood as living with a double burden; living with an aggressive, unpredictable pain and being doubted by others in relation to the invisible pain. The ever-present pain was described as unbearable, overwhelming, and dominated the women’s whole existence. Nevertheless, all the women tried to normalize life by doing daily chores in an attempt to alleviate the pain. In order to support the women’s needs and help them to feel well despite their pain, it is important that nurses and health care personnel acknowledge and understand women with FM and their pain experiences.

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  • 23.
    Juuso, Päivi
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Meanings of being received and met by others as experienced by women with fibromyalgia2014In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 24, no 10, p. 1381-1390Article in journal (Refereed)
    Abstract [en]

    Fibromyalgia (FM) is a common chronic pain syndrome that mostly affects middle-aged women. Our aim with this study was to elucidate meanings of being received and met by others as experienced by women with FM. Interviews with a narrative approach were conducted with 9 women. We analyzed the transcribed interviews with a phenomenological hermeneutical interpretation. The findings revealed two themes: being seen as a malingerer and being acknowledged. Meanings of being received and met by others, as experienced by women with FM, can be understood as a movement between the two perspectives. When they were acknowledged, their feelings of security and trust increased, but the women could not rely on this because others received and met them in such an unpredictable manner.

  • 24.
    Juuso, Päivi
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Meanings of feeling well for women with fibromyalgia2013In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 34, no 8, p. 694-706Article in journal (Refereed)
    Abstract [en]

    The researchers focus in this study was to elucidate meanings of feeling well for women with fibromyalgia (FM). We obtained narrative interviews with thirteen women with FM and used a phenomenological-hermeneutic interpretation to analyse the interview texts. Our interpretation of the findings show that for women with FM meanings of feeling well can be understood as having strength to be involved. The women's experiences of feeling well meant being in control, having power, finding one's own pace and feelings of belonging.

  • 25. Juuso, Päivi
    et al.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Sundin, Karin
    Söderberg, Siv
    The Workplace Experiences of Women with Fibromyalgia2016In: Musculoskeletal Care, ISSN 1478-2189, E-ISSN 1557-0681, Vol. 14, no 2, p. 69-76Article in journal (Refereed)
    Abstract [en]

    Purpose: Fibromyalgia (FM) is a common pain syndrome that mostly affects women. Chronic pain and other symptoms often chalenge work for women with FM. This study aimed to explore how women with FM experience their work situations. Method: A purposive sample of 15 women with FM was interviewed with in-depth qualitative interviews. Data were analysed using a hermeneutic approach. Results: The results revealed that women with FM experienced incapacity to work as they had previously and eventually accepted that their work life had changed or reached its end. Since their work had great significance in their lives, feelings of loss and sorrow were common. Women who were working, unemployed, or on sick leave described feelings of fear for their future work situations. Conclusions: Women with FM greatly value their work. Their wish to perform work as before is however, not consistent with their abilities. As such, women with FM need support in continuing to work for as long as possible, after which they need support in finding new values in life. © 2016 John Wiley & Sons, Ltd.

  • 26.
    Juuso, Päivi
    et al.
    Luleå University of Technology, SWE.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Söderberg, Siv
    Mid Sweden University, SWE.
    Recovery despite everyday pain: Women's experiences of living with whiplash-associated disorder2020In: Musculoskeletal Care, ISSN 1478-2189, E-ISSN 1557-0681, Vol. 18, no 1, p. 20-28Article in journal (Refereed)
    Abstract [en]

    Introduction: Living with whiplash-associated disorders (WAD) means living every day under the influence of pain and limitations. As the incidence of WAD and the related intensity of pain are somewhat higher among women than men, the aim of the present study was to describe women's experiences of living with WAD. Methods: A purposive sample of seven women participated in individual in-depth qualitative interviews, the transcripts of which were subjected to qualitative content analysis. Results: The results of the analysis suggested six themes of women's experiences with WAD: living with unpredictable pain; trying to manage the pain; living with limitations; being unable to work as before; needing support and understanding; and learning to live with limitations. The findings showed that unpredictable pain limited women's strength to engage in activities of daily life and be as active as before. Support and understanding were important for their ability to manage changes in their daily lives. Conclusions: Pain considerably affects the daily lives of women with WAD, particularly by limiting their ability to perform activities and to enjoy their professional and social lives. As women with WAD need support with managing their daily lives, nurses and other healthcare personnel should adopt a person-centred approach, in order to support such women according to their individual needs and circumstances. © 2020 John Wiley & Sons, Ltd.

  • 27.
    Juuso, Päivi
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    The significance of Associations for women with FM2014In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 36, no 21, p. 1755-1761Article in journal (Refereed)
    Abstract [en]

    Purpose: Living with fibromyalgia (FM) means living with a long-term pain syndrome that is invisible to others. Support and understanding from others seem to be important to managing the affected daily life. The aim of this study was to describe the significance of FM associations for women with FM. Methods: Data collection was carried out through focus group discussions with seventeen women with FM. Data were analyzed through thematic content analysis. Results: The findings show that women experienced associations for people with FM as important as they gave access to contacts with others with similar experiences. Their need of togetherness was fulfilled at the association and they described being strengthened by the support received. Because of the lack of information and knowledge about FM, the association was described as an important venue for getting and mediating information about the illness. Conclusions: At the association the women seem to be empowered, which increases their ability to manage their daily lives despite the limitations imposed by FM. Healthcare personnel could not satisfy the women’s needs and to manage to support women with FM. There is a need for communication based on a shared understanding between the women and healthcare personnel.Implications for Rehabilitation Read More: http://informahealthcare.com/eprint/hxrQu88eIVBPKf48aBpd/full

  • 28.
    Kassberg, Ann-Charlotte
    et al.
    Björkskatans vårdcentral.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Experiences of ethical dilemmas in rehabilitation: Swedish occupational therapists' perspectives2008In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 15, no 4, p. 204-211Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe Swedish occupational therapists' experiences of encountering ethical dilemmas in rehabilitation and strategies they used to handle the situations. Twelve occupational therapists who work with adults with developmental disabilities were interviewed using a semi-structured interview design. Data were analysed using qualitative content analysis. The results showed that ethical dilemmas were common in the occupational therapists' daily work within rehabilitation. Many situations that created ethical dilemmas were related to occupational therapists who worked with clients and their relatives, and other healthcare providers. The results showed further that occupational therapists found it difficult to make decisions and to optimize clients' participation in decision-making, to set limits and act professionally, and to best handle the situation for the client and avoid ethical dilemmas. This study indicates the importance of illustrating experiences of ethical dilemmas within occupational therapy praxis and the meaning of discussing ethical dilemmas with different healthcare providers to reach a divided view of the client in order to develop successful and healthy strategies that will optimize the rehabilitation of clients with developmental disabilities.

  • 29.
    Lind, Leili
    et al.
    institutionen för medicinsk teknik, Linköpings universitet.
    Kovordanyi, Rita
    Linköpings universitet, Institutionen för data-vetenskap.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Åhlfeldt, Rose-Mharie
    Högskolan i Skövde.
    Svensson, Anders
    Högskolan för lärande och kommunikation i Jönköping.
    Att fånga nyttan av IT-investeringar inom vård och omsorg: En analysmodell för planering och uppföljning av IT-investeringar2011Report (Other academic)
  • 30.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Nilsson, Carina
    Luleå tekniska universitet, Omvårdnad.
    Wahlberg, Daniel Zotterman
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Using information and communication technology in home care for communication between patients, family members, and healthcare professionals: A systematic review2013In: International Journal of Telemedicine and Applications, ISSN 1687-6415, E-ISSN 1687-6423Article in journal (Refereed)
    Abstract [en]

    Introduction. Information and communication technology (ICT) are becoming a natural part in healthcare both for delivering and giving accessibility to healthcare for people with chronic illness living at home. Aim. The aim was to review existing studies describing the use of ICT in home care for communication between patients, family members, and healthcare professionals. Methods. A review of studies was conducted that identified 1,276 studies. A selection process and quality appraisal were conducted, which finally resulted in 107 studies. Results. The general results offer an overview of characteristics of studies describing the use of ICT applications in home care and are summarized in areas including study approach, quality appraisal, publications data, terminology used for defining the technology, and disease diagnosis. The specific results describe how communication with ICT was performed in home care and the benefits and drawbacks with the use of ICT. Results were predominated by positive responses in the use of ICT. Conclusion. The use of ICT applications in home care is an expanding research area, with a variety of ICT tools used that could increase accessibility to home care. Using ICT can lead to people living with chronic illnesses gaining control of their illness that promotes self-care.

  • 31.
    Lindberg, Terese
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Sandström, Boel
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Andersson, Ewa K.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Christel, Borg
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Hjelm, Markus
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Nilsson, Lina
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Olsson, Anki
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Older persons' experience of eHealth services in home health care: A meta-ethnography eHealth services in home health care2021In: Health Informatics Journal, ISSN 1460-4582, E-ISSN 1741-2811, Vol. 27, no 4Article in journal (Refereed)
    Abstract [en]

    This study aimed to describe older persons' experiences of eHealth services in home health care. A meta-ethnographic approach was applied, and a systematic literature search was conducted in three databases. In total, 11 articles were included and analysed, which resulted in two themes and six sub-themes. The results show that for older persons to use the eHealth services, they must provide some additional value compared to current contacts with healthcare professionals. Those with regular healthcare contact do not experience the eHealth service as adding anything to the care they already receive. The introduction of eHealth services involves learning how to use the new technology, and some older persons experience the technology as motivating and inspiring. The eHealth service makes some feel safer while some do not trust the technology. In order to make the best use of eHealth services, it is important that the services are adjusted not only to each person's needs but also to their personal capabilities and resources, while the older person must feel valued as an active partner in the care process. Thus, when using eHealth services, the older person's perspective needs to be given priority and decisions should not only be based on organizational considerations.

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  • 32.
    Lindgren, Eva
    et al.
    Luleå tekniska universitet, Instsutionen för Hälsovetenskap.
    Söderberg, Siv
    Mittuniversitetet, Instítutionen för omvårdnad.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Being a parent to a young adult with mental illness in transition to adulthood: Parenting young adults with mental illness2016In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 37, no 2, p. 98-105Article in journal (Refereed)
    Abstract [en]

    Parents of young adults with mental illness may face a continued demand for support, even though their children have reached the age of majority. The aim of this study was to explore relatives experiences of parenting a young adult with mental illness in transition to adulthood. Individual interviews were conducted and analysed according to Grounded Theory. The results showed that relatives experienced powerlessness and a sense of inescapable duty with limited possibilities to be relieved. With a family nursing approach, relatives can be supported and, when the young adults needs of care are met, they can be relieved from their burden of responsibility.

  • 33.
    Lindgren, Eva
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Managing transition with support: Experiences of transition from child and adolescent psychiatry to general adult psychiatry narrated by young adults and relatives2014In: Psychiatry Journal, ISSN 2314-4327, E-ISSN 2314-4335, article id 457160Article in journal (Refereed)
    Abstract [en]

    Young adults with mental illness who need continuing care when they turn 18 are referred from child and adolescent psychiatry to general adult psychiatry. During this process, young adults are undergoing multiple transitions as they come of age while they transfer to another unit in healthcare. The aim of this study was to explore expectations and experiences of transition from child and adolescent psychiatry to general adult psychiatry as narrated by young adults and relatives. Individual interviews were conducted with three young adults and six relatives and analysed according to grounded theory. The analysis resulted in a core category: managing transition with support, and three categories: being of age but not mature, walking out of security and into uncertainty, and feeling omitted and handling concerns. The young adults’ and relatives' main concerns were that they might be left out and feel uncertainty about the new situation during the transition process. To facilitate the transition process, individual care planning is needed. It is essential that young adults and relatives are participating in the process to be prepared for the changes and achieve a successful transition. Knowledge about the simultaneous processes seems to be an important issue for facilitating transition.

  • 34.
    Lindgren, Eva
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Swedish young adults’ experiences of psychiatric care during transition to adulthood2015In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 36, no 3, p. 182-189Article in journal (Refereed)
    Abstract [en]

    The number of young adults with mental illness and the need of psychiatric care has increased during the last decades. The aim of the study was to explore young adults’ experiences of psychiatric care during transition to adulthood. Individual interviews were conducted with 11 young adults and analysed according to Grounded Theory. The analyses results showed that support was a prerequisite for transition to adulthood and striving to reach recovery. By being encountered as a person and with a supportive environment, young adults can be motivated to continue care and be encouraged to express feelings.

  • 35.
    Lindgren, Eva
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    The gap in transition between child and adolescent psychiatry and general adult psychiatry2013In: Journal of Child and Adolescent Psychiatric Nursing, ISSN 1073-6077, E-ISSN 1744-6171, Vol. 26, no 2, p. 103-9Article in journal (Refereed)
    Abstract [en]

    BackgroundDuring transition from child and adolescent psychiatry (CAP) to general adult psychiatry (GenP) young adults with mental illness face multilevel transitions along with a risk for disruption in continuity of care. The aim of this study was to describe professionals' experiences and views of the transition process from CAP to GenP. MethodData were collected through six focus group discussions with professionals from both CAP and GenP and analyzed by content analysis. ResultsThe results showed a gap in transition between CAP and GenP when different perspectives and care cultures meet in a complex process. ConclusionsCooperation, transition planning, and a mutual understanding of care can support young adults in transition from CAP to GenP.

  • 36.
    Lindgren, Eva
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    The gap in transition between child and adolescent psychiatry and general psychiatry2013Conference paper (Refereed)
    Abstract [en]

    BACKGROUND: During transition between Child and adolescent psychiatry (CAP) and General adult psychiatry (GenP) young adults with mental illness face multilevel transitions along with a risk for disruption in continuity of care. Rigid boundaries between the disciplines can be a disadvantage and to decrease the risk transition planning and cooperation are needed.AIM: The aim of this study was to describe professionals’ experiences and views of the transition process from CAP to GenP. METHOD: Data were collected through six focus group discussions with professionals from both CAP and GenP. RESULTS: Data were analysed by content analysis with an deductive approach based on Meleis' middle-range theory of transition. The results showed that young adults were undergoing developmental transitions simultaneous with situational transitions, and they were expected to take responsibility despite they still were in need of support. A gap in transition between CAP and GenP arises when different perspectives, i.e. family and individual perspective, and care cultures meet in a complex process. Lack of knowledge, a mutual understanding and cooperation could also increase the gap. To be able to support the young adult the professionals suggested an individual approach in the transition process.CONCLUSIONS: It is important that professionals at both CAP and GenP focus on transition issues to support young adults to reach a successful transition and adjust to the new situation as adults and user of health care at GenP. Cooperation, transition planning, and a mutual understanding of care can support young adults in transition from CAP to GenP.

  • 37.
    Mikaelsson Midlöv, Elina
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Lindberg, Terese
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Relative's suggestions for improvements in support from health professionals before and after a patient's death in general palliative care at home: A qualitative register study2024In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed)
    Abstract [en]

    Introduction: The efforts of relatives in providing palliative care (PC) at home are important. Relatives take great responsibility, face many challenges and are at increased risk of poor physical and mental health. Support for these relatives is important, but they often do not receive the support they need. When PC is provided at home, the support for relatives before and after a patient's death must be improved. This study aimed to describe relatives' suggestions to improve the support from health professionals (HPs) before and after a patient's death in general PC at home. Methods: This study had a qualitative descriptive design based on the data from open-ended questions in a survey collected from the Swedish Register of Palliative Care. The respondents were adult relatives involved in general PC at home across Sweden. The textual data were analysed using thematic analysis. Results: The analysis identified four themes: (1) seeking increased access to HPs, (2) needing enhanced information, (3) desiring improved communication and (4) requesting individual support. Conclusions: It is important to understand and address how the support to relatives may be improved to reduce the unmet needs of relatives. The findings of this study offer some concrete suggestions for improvement on ways to support relatives. Further research should focus on tailored support interventions so that HPs can provide optimal support for relatives before and after a patient's death when PC is provided at home. © 2024 The Authors. Scandinavian Journal of Caring Sciences published by John Wiley & Sons Ltd on behalf of Nordic College of Caring Science.

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  • 38.
    Mikaelsson Midlöv, Elina
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Lindberg, Terese
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Sterner, Therese
    Malmö university.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Support given by health professionals before and after a patient's death to relatives involved in general palliative care at home in Sweden: Findings from the Swedish Register of Palliative Care2023In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523Article in journal (Refereed)
    Abstract [en]

    Objectives. General palliative care (PC) is provided more at home, leading to increased involvement of relatives. Although support for relatives is a fundamental component of PC, there are deficiencies in the support provided to relatives when general PC is provided at home. This study aimed to describe the support provided by health professionals before and after a patient's death to relatives involved in general PC at home.

    Methods. A cross-sectional register study was implemented, with data from the Swedish Register of Palliative care. The sample consisted of 160 completed surveys from relatives who had been involved in general PC at home, with 160 related surveys answered by health professionals. Only the questions about support to relatives were used from the surveys.

    Results. The findings showed that although many relatives appear to receive support in general PC at home, not all relatives receive optimal support before or after a patient's death. The findings also indicated differences in whether relatives received some support before and after a patient's death depending on the type of relative. There were also differences in responses between health professionals and relatives regarding if relatives received counseling from a doctor about whether the patient was dying.

    Significance of results. There is potential for improvements regarding support for relatives, especially after a patient's death, which has been confirmed in previous studies. The differences in whether relatives received support before and after a patient's death depending on the type of relative highlight the need for future research on how to support different types of relatives before and after a patient's death when general PC is provided at home.

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  • 39. Nilsson, C.
    et al.
    Lindberg, B.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Söderberg, S.
    Meanings of balance for people with long-term illnesses2016In: British Journal of Community Nursing, ISSN 1462-4753, E-ISSN 2052-2215, Vol. 21, no 11, p. 563-567Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to elucidate meanings of balance in everyday life for people with long-term illnesses living at home. People living with long-term illnesses are in need of help and support to manage their daily lives. Twelve adults with extensive needs for help and support were interviewed. A phenomenological hermeneutic interpretation was used to analyse the interview texts. The findings show that balance in everyday life for people with long-term illnesses means striving for independence through care and support in their surroundings. It was also important to be able to choose how their lives would be and to be with others who listened and understood them for who they are. By building a relationship with patients at an early stage of their illnesses, nursing staff have an opportunity to understand what people who are living at home with long-term illnesses need in order to achieve balance in their everyday lives.

  • 40.
    Nilsson, Carina
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Swedish district nurses' attitudes to implement information and communication technology in home nursing2008In: Open Nursing Journal, E-ISSN 1874-4346, Vol. 2, p. 68-72Article in journal (Refereed)
    Abstract [en]

    The use of information and communication technology has increased in the society, and can be useful in nursing care. The aim of this study was to describe district nurses' attitudes regarding the implementation of information and communication technology in home nursing. The first and third authors performed five focus group discussions with 19 district nurses' from five primary healthcare centres in northern Sweden. During the focus group discussions, the following topics were discussed: the current and future use of information and communication technology in home nursing; expectations, advantages, disadvantages and hindrances in the use of information and communication technology in home nursing; and the use of information and communication technology from an ethical perspective. The transcribed focus group discussions were analysed using qualitative content analysis. The results showed that district nurses' attitudes were positive regarding the use of information and communication technology in their work. They also asked for possibilities to influence the design and its introduction. However, the use of information and communication technology in home nursing can be described as a complement to communication that could not replace human physical encounters. Improvements and risks, as well as the importance of physical presence in home nursing were considered vital. The results revealed that the use of information and communication technology requires changes in the district nurses' work situation.

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  • 41. Nilsson, Carina
    et al.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Swedish district nurses' experiences on the use of information and communication technology for supporting people with serious chronic illness living at home: a case study2010In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 24, no 2, p. 259-265Article in journal (Refereed)
    Abstract [en]

    The aim of this case study was to describe two District Nurses' (DN) experiences of using information and communication technology (ICT) to communicate with chronically ill people in their homes. An electronic messaging program via computers and mobile phones with an Internet connection was used, enabling DNs and the ill people to exchange messages to and from anywhere. The program comprised different virtual rooms, and communication was via text messages. The DNs in this study used the program two to four times each week from November 2003 to March 2004. Semi-structured interviews were performed before, during and after the implementation of the new technology and were analysed using thematic content analysis. The results showed that the DNs felt that the technology increased accessibility to nursing care through a more direct communication with the ill person meaning that a more trusting relationship could be created. The DNs also experienced that the use of ICT saved working time. This study indicates that the use of ICT for communication allowed the DN to better support a chronically ill person at home leading to improved home nursing care. This method of communication cannot replace physical presence, but can be seen as a complement to nursing care at home.

  • 42.
    Nilsson, Åsa
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Nurses' views of shortcomings in patent care encounters in one hospital in Sweden2015In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 24, no 19-20, p. 2807-2814Article in journal (Refereed)
    Abstract [en]

    Aim and objectiveTo describe nurses' views of shortcomings in patient care encounters in one hospital in Sweden.BackgroundShortcomings in encounters in healthcare have increased during recent years. Dissatisfaction with encounters in healthcare can affect patients' experiences of dignity, health and well-being.DesignA qualitative design was used in the study.MethodsThree focus group discussions with 15 nurses were conducted. The nurses worked in five different wards. The focus group discussions were subjected to a thematic content analysis.ResultsThe results are presented in two themes. The first theme, ‘Disregard for the patient's unique nursing needs’, describes that information without consideration of the patient's needs, and nurses not being completely present in the meeting with the patient affected healthcare encounters and experiences of quality of care. In the second theme, ‘Difficulty managing obstacles’, nurses described care situations over which they could not always prevail due to lack of time and/or lack of awareness of the patient's vulnerability.ConclusionThe findings illustrate the importance of nurses and their approaches to patients. The nurse's attitude is important for the patient's experiences of participation, security, dignity, and well-being. The findings also illustrate the importance of routines in the healthcare organisation that support and facilitate positive encounters between patients, their close relatives and the healthcare staff.Relevance to clinical practiceNurses require understanding, presence and commitment in their relationships to every unique patient, and their goal should be to adopt interventions with regard to positive healthcare encounters based on each patient's experiences of good nursing care.

  • 43.
    Niva, Bernt
    et al.
    Luleå tekniska universitet.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    A pilot study of the activity patterns of five elderly persons after a housing adaptation2006In: Occupational Therapy International, ISSN 0966-7903, E-ISSN 1557-0703, Vol. 13, no 1, p. 21-34Article in journal (Refereed)
    Abstract [en]

    The importance of an accessible home environment for occupational performance has been emphasized in occupational therapy, but knowledge about how accessibility can affect a person's activity patterns is limited. The purpose of this study was to describe the activity patterns of five elderly persons aged between 70 and 84 years and their views about accessibility and usability of their homes before and after a housing adaptation. Two different questionnaires, 'Accessibility in My Home' and the 'Occupational Questionnaire' were used for data collection. Adaptations in the home included: removing thresholds, installing new taps in the bathroom and kitchen and broadening doorways. After the adaptations the five participants reported that they increased their outside activities, reduced naps during the day and slept better at night. The results showed that the participants performed more and new activities when their home environment had become accessible. Activities performed were also perceived as more important after the housing adaptation. There is a need to replicate the study with a larger sample. Further research is needed on the impact of home adaptations on the activity patterns of elderly people.

  • 44.
    Nordmark, Sofi
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Information exchange between registered nurses and district nurses during the discharge planning process: Cross- sectional analysis of survey data2015In: Informatics for Health and Social Care, ISSN 1753-8157, E-ISSN 1753-8165, Vol. 40, no 1, p. 23-44Article in journal (Refereed)
    Abstract [en]

    Objectives: Discharge planning is an important care process for managing transitions from the hospital to the community. It has been studied for >20 years, but few studies clarify the information exchanged between healthcare providers. This study aimed to describe nurses’ experiences and perceptions of information exchange during the discharge planning process, focused on what, when and how information is exchanged between the hospital and primary healthcare. Method: A web-based census survey was used to collect data; the data were analyzed using descriptive statistics and chi-squared test. A questionnaire was distributed to 194 registered nurses (129 respondents) from a central county hospital and 67 district nurses (42 respondents) working in 13 primary healthcare centres. Results: The results show a significant difference between given and received information between the two groups. Both groups thought the information exchange worked best when all participants met at the discharge planning conference and that the electronic information system was difficult to use. Conclusion: This study shows difficulties knowing what patient-related information needs to give and not receiving the expected information. These results can be used to develop knowledge about roles, work tasks and needs to enhance the outcome of the process and the information exchanged.

  • 45.
    Nygren Zotterman, Anna
    et al.
    Lulea Univ Technol, SWE.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Olsson, Malin
    Lulea Univ Technol, SWE.
    Söderberg, Siv
    Mid Sweden Univ, SWE.
    Being in togetherness: Meanings of encounters within primary healtcare setting for patients living with long-term illness2016In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 25, no 19-20, p. 2854-2862Article in journal (Refereed)
    Abstract [en]

    Aims and objectives: The aim of this study was to elucidate meanings of encounters for patients with long-term illness within the primary healthcare setting. Background: Good encounters can be crucial for patients in terms of how they view their quality of care. Therefore, it is important to understand meanings of interactions between patients and healthcare personnel. Design: A phenomenological hermeneutic method was used to analyse the interviews. Methods: Narrative interviews with ten patients with long-term illness were performed, with a focus on their encounters with healthcare personnel within the primary healthcare setting. A phenomenological hermeneutical approach was used to interpret the interview texts. Results: The results demonstrated that patients felt well when they were seen as an important person and felt welcomed by healthcare personnel. Information and follow-ups regarding the need for care were essential. Continuity with the healthcare personnel was one way to establish a relationship, which contributed to patients’ feelings of being seen and understood. Good encounters were important for patients’ feelings of health and well-being. Being met with mistrust, ignorance and nonchalance had negative effects on patients’ perceived health and well-being and led to feelings of lower confidence regarding the care received. Conclusions: Patients described a great need to be confirmed and met with respect by healthcare personnel, which contributed to their sense of togetherness. Having a sense of togetherness strengthened patient well-being. Relevance to clinical practice: By listening and responding to patients’ needs and engaging in meetings with patients in a respectful manner, healthcare personnel can empower patients’ feelings of health and well-being. Healthcare personnel need to be aware of the significance of these actions because they can make patients experience feelings of togetherness, even if patients meet with different care personnel at each visit. © 2016 John Wiley & Sons Ltd.

  • 46.
    Nygren Zotterman, Anna
    et al.
    Luleå University of Technology.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Söderberg, Siv
    Mid Sweden University.
    Dignity encounters: the experiences of people with long-term illnesses and their close relatives within a primary healthcare setting2022In: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 23, article id e72Article in journal (Refereed)
    Abstract [en]

    AIM: To describe the experiences of dignity encounters from the perspective of people with long-term illness and their close relatives within a primary healthcare setting. BACKGROUND: The importance of dignity as a concept in nursing care is well known, and in every healthcare encounter, the patient's dignity has to be protected. METHODS: A purposive sample of 10 people (5 couples) participated in this qualitative descripted study. One person in each of the couples had a long-term illness. Conjoint interviews were conducted and analyzed with an inductive qualitative content analysis. RESULTS: The analysis resulted in three themes: i) Being supported by an encouraging contact; ii) Being listen to and understood; and iii) Being met with respect. Couples described being encountered with dignity as having accessibility to care in terms of being welcomed with their needs and receiving help. Accessibility promoted beneficial contact with healthcare personnel, who empowered the couples with guidance and support. Couples described a dignity encounter when healthcare personnel confirmed them as valuable and important persons. A dignity encounter was promoted their sense of feeling satisfied with the care they received and promoted safe care. Treated with dignity had a positive impact on the couples' health and well-being and enhanced their sense of a good impression of the healthcare personnel within the primary health care. CONCLUSIONS: Healthcare personnel must regard and consider people with long-term illnesses and their close relatives' experiences of dignity encounters to gain an understanding that enables them to support their needs and to know that the care is directed toward them.

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  • 47.
    Nygren Zotterman, Anna
    et al.
    Lulea tekniska Universitet, SWE.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Söderberg, Siv
    Mid Sweden University, SWE.
    Meanings of encounters for close relatives of people with a long-term illness within a primary healthcare setting2018In: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 19, no 4, p. 392-397Article in journal (Refereed)
    Abstract [en]

    Background: Encounters play an important role in the relationship between healthcare personnel and the close relatives of people with a long-term illness. Aim: The aim of this study was to elucidate the meanings of encounters for close relatives of people with a long-term illness within a primary healthcare setting. Methods: Interviews using a narrative approach were conducted with seven women and three men, and the phenomenological hermeneutic method was used to interpret the interview texts. Results: The structural analysis revealed three major themes: being confirmed as a family, being informed of the care, and being respected as a valuable person. Close relatives stated that they wanted to be confirmed as a family and have a familiar and trusting relationship with healthcare personnel. They valued being informed concerning the care of the ill person so that they could give support at home. It was also important to be compassionately viewed as an important person in a welcoming atmosphere based on respect and dignity. © Cambridge University Press 2018

  • 48.
    Olsson, Malin
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Meanings of being received and met by others as experienced by women with MS2011In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 6, no 1, p. 57-69Article in journal (Refereed)
  • 49.
    Olsson, Malin
    et al.
    Luleå tekniska universitet, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Omvårdnad.
    Meanings of feeling well for women with multiple sclerosis2010In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 20, no 9, p. 1254-1261Article in journal (Refereed)
    Abstract [en]

    In research concerning multiple sclerosis (MS), the factors that impact on people's well-being and quality of life have been studied, but little has been written about what it means to feel well for women with MS. Therefore, in this study our aim was to describe meanings of feeling well for women with MS. We interviewed 15 women with MS, and a phenomenological hermeneutic interpretation was utilized to analyze the interviews. Through this study it can be understood that finding a pace where daily life goes on means that women with MS feel well when the illness is kept in check and is not the dominant experience. The findings of this study can be used to confirm women's experiences of feeling well, despite living with the consequences of MS. Health care professionals will find the results of this study useful when they reflect on and formulate the care of women with MS when attempting to support the latter's desire to feel well in their daily lives.

  • 50.
    Piculell, Erik
    et al.
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Skär, Lisa
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Sanmartin Berglund, Johan
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Anderberg, Peter
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    Bohman, Doris
    Blekinge Institute of Technology, Faculty of Engineering, Department of Health.
    A concept analysis of health communication in a home environment: Perspectives of older persons and their informal caregivers2021In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 35, no 3, p. 1006-1024Article in journal (Refereed)
    Abstract [en]

    Background Health communication (HC) is a vast research field focusing on changing health behaviours, and rapidly evolving technology is creating different ways and possibilities to reach target groups and audiences. In the context of home care, a deeper understanding of HC is lacking, specifically for older persons with care needs and their informal caregivers. The aim of this concept analysis is to identify and construct the meaning of HC from the perspective of older persons in need of care in the home environment and their informal caregivers. Materials and methods This study utilised Rogers' (2000) Evolutionary Concept Analysis Method (EMCA) to create and construct a meaning of the concept of HC. The EMCA was based on a systematic literature review of scientific articles, using CINAHL, Pubmed and Inspec (2000-2017). A total of 29 articles were retrieved and analysed. Results The identified attributes of the concept were as follows: resources of the recipient, influence on decisions and advantages of tailored information. HC was described as both contributing to knowledge as well as being overwhelming where habits and resources influenced the use of information. The attributes led to the following descriptive definition of HC: 'Tailored HC, based on needs and resources of the recipient influence care decisions'. The home environment influenced HC by habits and interactions between older persons and their informal caregivers. Conclusions The home environment influenced HC in terms of social aspects of interactions and habits and between the older person and the informal caregiver. Tailored information with the use of technology contributed to knowledge in care of older persons and their informal caregivers. HC was shown to contribute to improve care for older people in their home environment.

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