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Digital Life Stories to Support Person-Centred Care of Older People with Dementia: Dynamic Documents
Blekinge Institute of Technology, Faculty of Engineering, Department of Health. SWEAH, (Blekinge Tekniska Högskola).ORCID iD: 0000-0002-9261-4784
2025 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

Background: Dementia is an umbrella term for diseases characterised by a progressive decline in cognition, social functioning and behavioural changes appearing in a state of clear consciousness. A person-centred approach emphasises the life-world perspective and allows the person to be involved and make decisions, influencing the care and treatment provided. Healthcare professionals should strive for personal care and a caring environment by tailoring nursing to the person's needs, preferences, abilities, and goals. In person-centred care, it is crucial to know the person, and life story work is one way to accomplish this in daily care by helping older people maintain their identities by reminiscing and sharing their stories. Life story work should be an ongoing process together with the older person and their close relatives. A life story in digital form can be a living document that is easily accessible and easy to use and update.

Aims: This licentiate thesis aims to summarise and describe the advantages and obstacles of healthcare professionals using digital life stories in daily care for older people with dementia to support person-centred care.

Methods: In study I, a scoping review with five stages described by Arksey and O’Malley (2005) was chosen because it was an appropriate way to obtain a quick overview of the extent of the research field regarding the use of digital life stories. The data was analysed using qualitative content analysis of the studies’ full text, according to Hsieh and Shannon’s (2005) method. In study II, semi-structured focus group interviews were conducted. Questions were designed to be open and focused to support data validity and encourage dynamic discussions. This qualitative descriptive study was designed to describe healthcare professionals’ experiences using life stories in the daily care of older people with dementia. An inductive thematic analysis, inspired by Braun and Clarke (2012), was used to systematically identify, organise, and provide an understanding of patterns of meaning. For this study, 15 assistant nurses were recruited with purposeful sampling.

Results: The key findings were that digital life stories enable personal content, like photos, music, and videos, and may improve symmetric interaction and communication. Life stories can facilitate activities based on the person’s wishes and needs. A digital life story is beneficial for handling behavioural and psychological symptoms of dementia. Integrating digital life stories into daily care could also improve new employees’ communication skills, communication with close relatives could be improved, and relatives can update content and keep up with moments through photos uploaded by the care setting. Life story work in digital form can support a person’s privacy, preserve dignity, and help reconnect to memories. There were concerns regarding time constraints and technical issues, and some obstacles using a digital life story concerned physical barriers. It appears preferable if the older person wrote the life story so it could indeed be their story. 

Conclusion: This research highlights the benefits of using life stories as a communication tool in daily care to support person-centred care of older people with dementia. Digital life stories can facilitate symmetric communication and help manage behavioural and psychological symptoms of dementia. Starting life story work early in dementia is crucial. Digital life stories, being easily accessible and updated, can enhance care by aligning with the older person’s evolving needs and preferences. This approach can inform policy, practice, and further research using digital life stories to support person-centred care.

Place, publisher, year, edition, pages
Karlskrona: Blekinge Tekniska Högskola, 2025. , p. 98
Series
Blekinge Institute of Technology Licentiate Dissertation Series, ISSN 1650-2140 ; 2025:01
Keywords [en]
Daycare Centres; Dementia; Digital Life Story; Healthcare Professionals; Life Story; Person-Centred Care; Residential Care Settings
National Category
Engineering and Technology
Research subject
Applied Health Technology
Identifiers
URN: urn:nbn:se:bth-27170ISBN: 978-91-7295-492-2 (print)OAI: oai:DiVA.org:bth-27170DiVA, id: diva2:1922272
Presentation
2025-03-06, J1630, Blekinge Tekniska Högskola, Karlskrona, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2024-12-18 Created: 2024-12-18 Last updated: 2024-12-19Bibliographically approved
List of papers
1. The use of a digital life story to support person-centred care of older adults with dementia: A scoping review
Open this publication in new window or tab >>The use of a digital life story to support person-centred care of older adults with dementia: A scoping review
2024 (English)In: Digital Health, E-ISSN 2055-2076, Vol. 10Article, review/survey (Refereed) Published
Abstract [en]

Introduction

A life story (LS) is a tool healthcare professionals (HCPs) use to help older adults with dementia preserve their identities by sharing their stories. Applied health technology can be considered a niche within welfare technology. Combining technology and nursing, such as using life stories in digital form, may support person-centred care and allow HCPs to see the person behind the disease.

Objective

The study's objective was to summarise and describe the use of life stories in digital form in the daily care of older adults with dementia.

Methods

A scoping review was conducted in five stages. Database searches were conducted in Cinahl, PubMed, Scopus, Web of Science, and Google Scholar; 31 articles were included. A conventional qualitative content analysis of the collected data was conducted.

Results

The qualitative analysis resulted in three categories: (1) benefits for older adults, (2) influence on HCPs’ work, and (3) obstacles to implementing a digital LS in daily care.

Conclusion

Older adults with dementia can receive person-centred care through a digital LS based on their wishes. A digital LS can enable symmetric communication and serve as an intergenerational communication tool. It can be used to handle behavioural symptoms. Using a digital LS in the later stages of dementia may differ from using it earlier in dementia. However, it may compensate for weakening abilities in older adults by enhancing social interaction.

Place, publisher, year, edition, pages
Sage Publications, 2024
Keywords
Digital life story, life story, person-centred care, residential care, scoping review
National Category
Nursing
Research subject
Applied Health Technology
Identifiers
urn:nbn:se:bth-26063 (URN)10.1177/20552076241241231 (DOI)001187351500001 ()2-s2.0-85188153890 (Scopus ID)
Available from: 2024-03-21 Created: 2024-03-21 Last updated: 2024-12-18Bibliographically approved
2. Healthcare professionals’ experiences using life stories in the daily care of older people with dementia: A focus group interview study
Open this publication in new window or tab >>Healthcare professionals’ experiences using life stories in the daily care of older people with dementia: A focus group interview study
Show others...
(English)Manuscript (preprint) (Other academic)
Abstract [en]

Introduction: In person-centred care, life story work is a tool for getting to know and helping older people preserve their identities by sharing their stories. According to previous research, life stories are not used to the desired extent; therefore, focus group interviews with healthcare professionals were conducted to explore experiences using life stories and the development potential they saw in their use.

Methods: This was a qualitative descriptive study. Purposeful sampling was used to recruit 15 healthcare professionals in residential- and daycare settings. Thematic analysis was applied to analyse the qualitative data collected from the semi-structured focus group interviews.

Results: Three main themes corresponding to the study’s aim were identified: (1) supportive tools for person-centred care, with the sub-themes; receiving information to support person-centred care, facilitating activities and handling behavioural symptoms and giving emotional support; (2) obstacles in using life stories with the sub-themes; limited access to life stories, lack of personal information and difficulties in interpretation; and (3) improvement areas with the sub-themes; increased usage, life story design, the older person’s story, and the potential of digital life stories. 

Conclusion: The key applications of life story work were enhancing communication and identifying meaningful, personalised activities. The life story could aid in handling behavioural symptoms and ease anxiety and stress. The importance of the life story being the older person’s story, with them, in an early stage, deciding the content, was highlighted. Improvement potential was seen using a digital life story, enabling an easily accessible story to update. 

National Category
Nursing
Research subject
Applied Health Technology
Identifiers
urn:nbn:se:bth-27274 (URN)
Available from: 2024-12-19 Created: 2024-12-19 Last updated: 2024-12-19Bibliographically approved

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